I was diagnosised with JME after noticing my arms were jerking or I was dropping things in the early morning. I was 14 then. The JME got worse, I started knocking over glasses and it progressed not just in the morning. It was more frequent and throughout the day. I was put on drugs. I had my first tonic-clonic seizure at a school dance during night. I've been having tonic-clinics since that day (exposed to flashing lights, exhausted, not taking medicine, hyperventilating). My grades have gotten worse due to lose of memory from seizures and concentration/attention. I have several scars from falling from seizures alone. Some in the shower. I want this to stop. I'm 17 and I don't have my permit because of seizures and I've been told that people die from epilepsy while driving. I'm scared. I don't want this. I've been told that epilepsy can go away on its own without any seizures. Is this true? With my case? No jerking? No tonic-clonics? I can live my life without being afraid and scared and depressed?
JME cannot be "cured" but it can be what is now called "resolved" because seizure frequency can decrease or stop as someone ages, whether they do or not have to stay on medication. Luckily this type of epilepsy is easier to control by medications than many other syndromes. I have it and still have "jerks" about twice a week, but I do not have grand mal seizures unless I trigger them myself accidentally (usually by sleep deprivation or consuming too much alcohol :/ My neurologist told me that myoclonic seizures can be difficult to control, but unless they seriously impair your safety, they can be easy to live with. It's normal to be scared at first because some other people worry about seizures happening. Stay strong!!!
PS: i've now been over one year seizure free! This means I can now apply to get my license. There is always hope that you will be able to get a licence. Though gas is so expensive now... is it really worth it...
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