... My seven year old daughter has systemic JIA. She has been on methotrexate for 20 months and Ilaris for 14 months. Her major symptoms have been well controlled with those two drugs. As of lately, she has been developing extremely painful sores. She has ulcers in her mouth and nose. I have been allowing her to use a mouthwash, which has helped the ones in her mouth. I don't know what to do for her nose though. At first I thought it was from the dry air, so I gave her saline spray, which didn't help. Then we used some antibiotic ointment on a q tip for a few nights. Nothing is helping though. Her little nose is so sore and red. The sores inside her nose will bleed occasionally and hurt so badly that she doesn't want anyone to touch her face. Any suggestions? I don't know if these ulcers are a symptom of the auto immune disorder or a side effect of the medicine.
Juvenile Rheumatoid Arthritis - Ulcers in mouth and sores in nose???
- 24 Feb 2015 by kellyh1022
- 22 February 2017
- rheumatoid arthritis, juvenile rheumatoid arthritis, methotrexate, ulcer, ilaris, mouth, nose, symptom, systemic, drug
Added 24 Feb 2015:
She does take folic acid also.
This is a little late and may not be relevant anymore, but just in case...
The mouthwash may irritate her mouth further. Warm salt water gargle 2 or 3 times a day may help with the inflammation and sensitivity. And there is a supplement called Lysine that is the only thing that helped me with chronic canker sores. It's safe, and may benefit not only the mouth but her nose sores as well. Take it every day and within a few days they will begin to heal. Continue taking the supplement to lessen the frequency of reoccurrences. It's an amino acid found naturally in the body. It's a way to be preventative, treating the cause as well as symptoms. Hope this helps her. I was diagnosed with jra at age 10. I'm 31 now and yes it's a struggle. But something I want to emphasize to u is that the emotional toll of living with this is sometimes far more difficult than the physical aspects... it's a lonely feeling, especially as a child, that no one else feels like u do not can truely relate to what life is like with pain. At least that's what my personal struggle has been. Supportive is all u can be for her and don't say "I know" or "I'm sorry" or "it's ok" because u don't know, it's not ur fault, and some days it's not ok. I hope this helped and sorry it was way more than u asked for. Oh and one last thing... With pain comes amazing strength. Her ability to survive and persevere through whatever struggles she is dealt will astound you... Now I'm done :)
Hi about ulcers. In your babys mouth fron experience. My mom was. Taken methrotrexate along with folic acid and developed. Ulcers in her mouth and was hospitalized. For it. The dr said it is a side affect. Of methrotrexate. So they. Discontinued. It and put her on some thing else. My suggestions. Because. The ulcers. Are so painful to talk to her dr and have it changed. Hope i was some. Help.
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