It was detected when she was 2 1/2 months old. She was put on Soda bicarb and potassium citrate and hydrochlorothyiazide. She is 8.5 years now. In last 5 years or more she had developed bone issue. She has had number of fractures in her legs and in arms. Her legs were operated to insert rush pins. She walked with the help of uwalker for a while but again since last 2 yr she seems to be having the fractures again. Now the arthopedic has decided to insert growing nails in her legs. My question is to anyone out there please help me if you know anyone who has similar issue the kidney and the bone plus is there anything that can stop the fractures from appearing all the time. She was given a medicen known as aminomax to stop the fractures. It worked for a year or so but even that does not seem to be working. somebody please help
Sorry, I dont have any answers for you but I just wanted to tell you that your little girl and you will be in my prayers. Nothing is more heartbreaking than when your children are not well. I'm so sorry your little girl has had to go through so much at such a young age! She must be in a lot of pain and pain I do know about. Bless her heart! I hope you find your answers. I have a lot of resources and I will look around to see what I can find. Hang in there and never lose hope!
Hi there, my son has RTA as well. One thing you might want to try is having her Vitamin D level checked. Obviously we all know how Vitamin D helps with bone strength. My sons doctor had him on a Vitamin D supplement to prevent the fractures and hollowed bones caused by the acidity in the blood.
Hi... first I'm sorry about your baby girl. . My daughter who is now 10 she was diagnosed with RTA when she was 5 days old. And she's been on sodium bicarbonate.. We see a kidney specialists and she's under doctors care ..she also has a growth delay and now they noticed her knee isn't growing right. So we got to see a bone specialist now .And she hasn't grown much..I have a 7 yr old daughter and they're the same height . Doctors tell us that she will stay that small and that for her age she will get her menstrual soon. I didn't know I'm not the only one going through this.
- Potassium Citrate Information for Consumers
- Potassium Citrate Information for Healthcare Professionals (includes dosage details)
- Side Effects of Potassium Citrate (detailed)
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