to do,. for example cleaning the whole house, making my bed, dress up, cooking, having some one to talk with, in over all I can't do what once was normal, I just can't anymore. I have no income, SSI denies to help me, in other words I'm at the mercy of God and a few left friend. Is there help out there that I didn't know?
Hello sasvio. There is member on this site who might beable to offer you possibly advice. Her name is ukliz. If you look at top of the page you'll see members. Click on that, then enter ukliz. Once there, on her page you can click on any of her posts, comments and leave your question. She'll when back on line, see your post and most probably beable to answer you, one way or the other. Best wishes,
Dear sasvio,I am so sorry for your circumstances.I cannot imagine the days you endure.I do not know anything about m.s. Except what most people hear.I just could not bare to see you wait this long for someone besides pledge,who usually can answer anything. maybe you found the help you needed already I just wanted you to know you are not alone and I trust some one else well give you the answers you need.bless you c.
Hi, Sasvio welcome to the site, this was a good move on your part you will get the support and advice that will truly help you. I read your question and I feel for you and if you are anything like me you don't mind a bit of sympathy but you would rather have answers. I am sure there are many other people that feel the same way, the thing I have learnt over the many years is that you have to have support. If you can not get it from family and friends you have to get the support from some where else. This year was the very first time I asked for help from the people that live in the same street as me but you hardly see, in fact the person I rang to ask for help which was so so difficult for me to do because I am normally a very private person, but I am trying hard to change this because it is time to.
But anyway I rang this person I met for the first time at a Christmas party at another neighbors house, we got on really well and had a lot to talk about and she said those famous words, if I can help i anyway give me a call. So I did after I had been away from home now for 3 weeks and I was on the phone to my daughter and she sounded so stressed out, that it worried me enough to phone for help.
When I phoned this neighbor she was so happy and glad I had called her, she was so genuine with her wishes it was such a load of my shoulders. She arranged with a few other neighbors to have meals sent to my husband David and Daughter Sarah right down to 3 course meals, which then helped Sarah and David out because this was one less thing they had to think about. So I guess what I am trying to say you need help also, physical help. So is there any neighbors that can help, also have you called your local MS society because they have people there also that can help and answer many questions and give good advice too, and if they don't know they will get back to you as to how they can help. This site your on now have a lot of experienced people all over the place and even if they can not answer your question they will give you another kind of help, that is love and hope. We all need these and should grab it with both hands, well I have to go for now but if you want to talk feel free to do so. I know I haven't really answered all you questions but I will answer more later, take care. Liz.
Sasvio look up the multiple sclerosis foundation or msf they are not effiliated with the multiple scerosis foundation. They will help you get the things to make daily living easier and better. They help with ac to help cool down as well as cooling vest thing to make bathroom higiene easier lift chairs hand controls and such for your vehicle information places to get free yoga water excercise pt and they don't charge for any of their services all you need to do is verify you have ms. They also have outings for family and friends you can goto picnics a lot of thing. If you don't need a device permanantly but for temperary use they have a borrowing center as well. They have helped me a lot wonderful understanding people I recommend them to antbody who has ms and if you know others to recomend them. If yu have any other quesstioons feel free to pq me ill answer any that I can jaime }litlmommag
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