my daughter just been diagnosed with ITP. she is 15 years old and has been on prednisone for 4 months. Has recently had solumedrol iv injections for 3 days--back on 20mg prednisone daily for 2 more weeks, then we'll try to wean her off--has been on plaquinel for 2 months--we'll see where the platelets are soon. This has been a nightmare for her as well as the family--
Is there anyone living with ITP?
- Asked
- 17 Jul 2010 by geriedawn
- Updated
- 27 Oct 2014
- Topics
- idiopathic (immune) thrombocytopenic purpura, prednisone, injection
Details:
Responses (4)
Galt47
22 Sep 2011
KayleeJ17
31 Jan 2013
I was diagnosed with ITP when I was 13, Im 17 now. I woke up to a nosebleed that wouldnt stop, I would lean my head over the sink and it would just drip and drip, when the bleeding didnt stop my dad took me to the emergency room, at first they had no idea what was going on, to stop the bleeding, the doctor had inserted a nasal tampon into my left nostril. I was transported by ambulance to Childrens. I was admitted and my blood was drawn, it showed that my platelets were at 16. I was there for about two weeks, being monitored, the doctors came in and talked to my parents, I could tell on their faces that they didnt think I was going to clot. They had me take a transfusion, not a blood transfusion. The next day my platlets rose to the 300's. I was monitored and given medication to take while I was at home. After I got home, I went to my regular pediatrician, and had my blood drawn every monday, some tests were done by my pediatrican the others were done at Childrens.
7882
6 Mar 2014
smasten
27 Oct 2014
Hi Geriedawn :) I have been dealing with Chronic ITP for the past 6 years. I am a 40 yr old female. All I can say in response to your question is this: everyone is different. Some patients bounce back from prednisone therapy while others do not. The same is said for splenectomies and various infusions (rituxan, ivig, solumedrol, etc... ). I have worked my way down the list and am currently getting combination of IVIG/Vincristine infusions every two weeks. Vincristine is a form of chemo (not as strong as cancer treating chemos). You might ask your doctor about Dapsone (sp?). This is where we are headed next with the treatment plan. I would recommend that you look at Platelet Disorder Support Association (www.pdsa.org). They can provide you with very helpful tools and questions to ask the doctors.
Further Information
- Prednisone Information for Consumers
- Prednisone Information for Healthcare Professionals (includes dosage details)
- Side Effects of Prednisone (detailed)
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the computer cut my answer off: I was first diagnosed with itp in 1961. My platelet count continued to drop despite steroid therapy and I sufferen a cerebral hemorrhage. A spleenectomy failed to produce improvement and I remained hospitalized on massive doses of steroids. In February, 1962 I was hospitalized for an acute episode of itp.
In 1987 I had another acute episode but was not hospitalized because the hematologist thought I knew enough about itp to call if needed. I was on steroids 7 months each time.