When I was a kid, I had epilepsy and when I was around 5, I had a really bad seizure, so my parents took me to the doctor. They had me on Dilantin infatabs, do not remember the dosage. By the time I was a senior in high school, I was off the med's and did not seizures, but the doctor said I would need to always get a good night sleep(I have severe sleep apnea now) and eat right. On occasion I will have mini seizures, but they are not serious enough to go back to the doctor. I am 50 now. Besides convulsions, what are some of the other types of seizures?
I am not in the medical field and can only tell you what my experience has been. My son had what the doctors called childhood epilepsy. Like you he had a really bad seizure when he was 3. The doctors also put him on Dilantin. He was only on the medication for about 3 years. He never had another grand mal (sp?) seizure but had several absence seizures. He would just stare into space, drool and sometimes babble incoherently. The doctors assured me that he would grow out of it and by the time he was in junior high school he was seizure free. He is 25 now and has not had a seizure in over 15 years. I can tell you that he suffers from severe insomnia. I don't know if this has anything to do with the seizures he had but there may be something to it since you suffer from sleep apnea. Anyway, I don't know if this helps you at all but did want to share what his experience was. Good luck to you!
It is not uncommon for children to have seizures and then not have any after they pass through puperty. Doctors often say they outgrew it. However, these now adults often have a lower threshold for futher seizures and that is why it is important to retain good health and get good rest. There are many types of seizures besides generalized - brief starting or absence, partial seizures etc. Check out a web on types of seizures and you get a fair bit of information. Occasionaly someone who has not had seizures for years will have seizures later in life due to their low threshold and becuse of things lke oxygen deprevation - ie smoking causing lung damage etc. If you feel you are experiencing something that may be a seiure make detailed notes of what you were doing, how you were feeling and what happened that caused you to feel strange. This will be very useful information for your doctor should further problems arise which I certainly hope does not happen. Best wishes.
To answer your question; epilepsy can be a lifelong condition, one can "grow " out of it (as in petit-mal seizures) but in many cases(as in mine), it will have to be controlled by medication .Epilepsy can be caused by many factors ie:birth trauma,head injuries or exposure to toxins. Besides convulsions, there are absence , petit-mal , and febrile. I hope that this answers your questions; if you have any more, feel free to ask and good luck!
I can answer that one because I have... lets see, status epi-seizures, which means I am functioning physically but my brain is gone: example I once took a cab home from my friends house... the last thing I remember is talking before I walked out the door, next thing I remember the cab driver is asking me for money, and I don't understand why and I am not even sure what money was... I kept asking him what he was talking about and trying to get out of the cab, then I remember him standing outside the door and he would not let me out, he was on the phone... don't remember until a police officer opens the door, and he asks me if I was trying to skip out without paying, and I still didn't understand why I had to give the cab driver anything, but I did know he wanted something from my wallet, so I started handing him cards like my Rewards-Type cards, and I tried to give him my drivers license.
The cab driver was getting mad I guess, I just remember him pacing in the background rubbing his forehead and making large hand-gestures, but I could not hear what he was saying. The police were asking me if I had been drinking etc,,, which I had not. I guess they finally got me to tell them my friends name, so they called him from my phone. They put me on the phone and me friend asked me what was going on and I told him that I wasn't sure, all I knew is that they would not let me leave the car and go to my apartment. My friend told me that they just wanted me to pay the cab driver, and when I told him that I didn't know what he was talking about the police called 911... I still feel like I just came to the ER and took a nap before they admitted me, but when I reviewed my records later, I was a boarder patient for over 12 hours. They brought a rolling EEG to my ER room and it took them three orders of Ativan before I could at least tell them it was 1994 (it was 2012). The President was Bush until the next morning when I was upstairs. Status is pretty common for me before a Grand Mal, and I can wander for hours without recollection, but this past event came on quickly, lasted a long time. (my actual diagnosis is pediatric myoclonic epilepsy), I have tonic-clonic... Grand Mals(or what I call the Grand Daddy's), absence seizures, nocturnal seizures, complex partial. It's quite embarrassing to go on my clinic visits and there are kids everywhere with their parents and toys around the lobby. As I am getting my vitals taken there is a nice big poster of Elmo in front of me... Oh my goodness... I just sit there. There are more, but I get the pleasure of variety, oh Yay! :0( I understand that you have not had to be on Meds and it's relatively controlled with rest, but take my advise and see your Neurologist every year for a check-up. Especially if you have sleep apnea, because you need that REM to actually get a good/healing/refreshing rest. When I was a child I dropped my milk and I was "clumsy". When I was 16 I was a "space cadet", I had my first Grand Mal at 25 and now I can be fully functional, you wouldn't even notice a thing, and I would not remember anything. I still have a friend who asks me about a really fun day we had when we spent the day fishing, swimming and had a really nice dinner: he said I read the menu and knew what I wanted right away (usually I am so undecided that it takes me forever to order). To this day, I don't remember one small thing, even a hint of that day, and he has told me the story in full detail at least 20 times. I could tell you story after story just like those two. I am 45, and I was recently diagnosed with Narcolepsy. I want to encourage you to make an appointment and request an EEG.. Any type of seizure is serious enough to monitor. No doctor will blame you for scheduling annual exams, even if they are always normal (or at least okay), especially if you have a history. Keep in touch.
- Dilantin Information for Consumers
- Dilantin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Dilantin (detailed)
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