... medical issues ever... that is up until about a year ago. The first symptoms I can recall were less frequent bowel movements and constantly feeling like I needed to move my bowels and could not do so. The next symptoms I began to notice were strange "squishy" noises coming from my stomach-most noticeably when I would touch it-as well as feeling things actually inside my stomach punching me from the inside(I now believe these are spasms). I also felt like there was a constant solid mass in my stomach at all times. I still currently experience all of these symptoms however the frequency of them has become a 24 hours a day/7 days a week thing when it used to not be daily. I cannot pinpoint any stressful situation or time I was going through a year ago that would all of a sudden trigger these symptoms. I at first self treated using laxatives,stool softeners, and enemas. These produced bowel movements but I always felt the urge to go more and it would not happen. For the most part, I could not have a bowel movement without using a laxative or enema. I finally went to my PCP who ordered some tests (thryoid etc-all came back with no abnormalities) and referred me to a GI doctor. I had an extremely awful experience with Dr. James Pilla (in Pittsburgh), the GI specialist I was referred to go see. At the first appointment this past June, I was very specific in the fact that I cannot have a bowel movement without the aid of something and even then my bowel movements are *maybe* once per week-and he did not seem to find any of this abnormal. So he encouraged miralax (which I already told him I had to discontinue bec. I was still not having bowel movements just becoming bloated to the point I could not even sit down) and a high fiber diet (approx. 30 grams a day)-which after doing my own research, all of the message boards say NOT to eat a high fiber diet with IBS-C because it will exacerbate symptoms-which proved to be 100% accurate and caused me more pain than I had ever been in before-still with no bowel movements. I went through with a colonoscopy-which was noted to be "unremarkable". He also prescribed both bentyl and linzness-neither of which improved my symptoms at all. About 2 weeks after the colonoscopy, I was having a particularly bad flare-up ( I hadn't had a bowel movement in 5-6 days, I could not wear anything but leggings or sweatpants because my stomach was so bloated, and it literally felt like I had worms in my stomach because there was so much movement) and ended up going to the ER. They ended up doing an x-ray and CT scan and I was told the only thing they saw was "a lot of stool". They sent me home after 8 hours with the instructions to "drink magnesium citrate"-which I did and it finally produced a bowel movement but not for another 24 hours. I am very frustrated because I have a high deductible insurance plan ($2500) and I have not gotten what I feel is any useful treatment and I have had to pay nearly $2500 for nothing. My insurance would not cover medical nutritional therapy or nutritional services and I could not afford to pay for it out of pocket. I attended a CCFA symposium and obtained the name of a group (Allegheny Center for Digestive Health) that treats GI issues-however the only physician in the group who specializes in IBS is not taking new patients, however I did make an appointment with another provider in the group. I, on my own, have ceased a high fiber diet however I still experience excruciating pain nearly all day every day to the point that I am not able to sit down and if I am forced to like at work-I have to get up every 10-15 minutes. I have significantly less pain standing up or lying down. I have been eating greek yogurt and a banana in the AM, usually broth soup for lunch, and for dinner grilled chicken with a small serving of thoroughly cooked zucchini/mushrooms. I have been eating a low gluten, low dairy diet-although I'm not sure if this is making a difference. My brother was recently diagnosed with ulcerative colitis and is undergoing Remicade treatments and has been able to have doctors properly treat him-which is another of my frustrations-I do not feel like any medical providers are taking this seriously. And I take it very seriously as I am now extrememly depressed and experiencing chronic pain every day. I am at my wits end and truly do not know what to do or where to go from here-PLEASE HELP ME!!!
Irritable Bowel Syndrome - PLEASE PLEASE PLEASE HELP ME???
- 5 Nov 2013 by LAH1985
- 4 January 2015
- irritable bowel syndrome, diarrhea, medical, recall, bowel movement, syndrome, symptom
Added 5 Nov 2013:
I am a 28 year old female who never experienced any medical-GI or otherwise- issues until approximately 1 year ago.
1) If you have been constipated for a while, then a high-fiber diet too soon can be aggravating (because your smooth musculature is not used to the activity). It is better to slowly increase fiber intake
2) You may have a severe gluten intolerance (like Celiac), in which case you have to cut gluten out 100%. "Low gluten" will still exacerbate a Celiac patient. Try 100% gluten-free for one month and see if you notice a difference (but you have to be religious about it, if you want to rule this out).
3) SIBO is a possibility. Typically a low-grain and high-fiber diet coupled with a good probiotic supplement can get on top of this. Occasionally, you'll need to take a stronger antibiotic, like oregano oil (600mg) daily for a month. A functional medicine doctor can help with this (functionalmedicine.org)
4) You could have an autoimmune disease like your brother's UC. There are a few screening blood tests to rule out autoimmunity: ESR, CRP, ANA titers, Rheumatoid Factor, etc. A rheumatologist is typically better at managing these patients than a general practitioner.
5) You may have magnesium deficiency. Try 400mg per day, with 100mg B6.
6) A juice-diet may be worth considering. You can pick up a cheap juicer at Target for $25 or so (although, I prefer the Champion). Try consuming nothing but juice for a week or so (preferably vegetables like carrots, but adding some fruit shouldn't hurt).
I agree that at this point a high fiber diet would not benefit you. If you are eating yogurt, make sure that it contains an active probiotic as not all yogurt does. You might also want to try another fruit besides bananas, which can actually be binding. Hopefully your appointment with the new doctor will be more productive than your current GI. It's unfortunate that doctors with the bedside manner of wet cement are not uncommon. You might want to discuss a medically administered colonic with the new Dr. These can be administered several times a week and may be what's required to help you pass what are probably very large masses of feces that are probably several months old and very hard. These masses can be extremely difficult, if not impossible, to move by yourself. This condition can be really painful and you have my sympathy. The Dr can test you for Celiac's diease to test your tolerance to gluten. I wish you the very best with your new Dr. I promise you there are some very caring and compassionate ones out there!
I hav crohns md I hav the EXACT symptoms u do nd I can't get ne help iv not used the bathroom n 28days I'm damn near bout 2 explode I'm pretti well bedridden ben 2 the dr numerous times they hav done nd stil continue 2 do nuthn I feel near death so please if u get ne help let me kno I need help terribly myslf.
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