Hello I am new to group as well as to CML (diagnosed December 2013). I noticed most posts are from 2012 or later, my question is is this group still active? I am curious to how people are doing on Sprycel and how long they have been on it as I would like to have an idea of what the future holds. Thanks in advance for any answer's or info.
I was diagnosed in 2007 with CML. Started Gleevec. side effects was nausea, and bone pain, but it worked till 2010 and had to switch to Sprycel. I have been on Sprycel since. Side effects when I started was fatigue. After 3 yrs. I started having major back and bone pain, headaches, and depression. Some have very few side effects, but I had to quit work this year due to all side effects have removed me from the work force.
I was diagnosed with cml in May of 2013. I take sprycel 100mg. Sorry to say the my side effects have not gone away. I finally have reached this October MMR. However, I now have stronger lower back pain, bone pain extreme migraine headaches, nausea, sometimes blurry vision, sleep a lot and now I feel very anxious with depression. I just called my Onc today and left a message for her to call me back. I am waiting on a calk back. I feel like the side effects are going to do me in. Sorry, I wish I had better news for you but this is actually the first time I'm venting. I feel guilty if I complain because either you take the pill and survive or you stop taking the pill feel better for a little while but potentially die. I can't work and just recently filed for disability. I'm almost sure that I will get denied because they call this "the good cancer".
I don't know what will happen then but I pray everyday for me and all of you that this too shall pass! Good luck and god bless
- Sprycel Information for Consumers
- Sprycel Information for Healthcare Professionals (includes dosage details)
- Side Effects of Sprycel (detailed)
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