Going in for my next infusion of Actemra soon. Meantime, had to ask for another perception of prednisone. I am hoping the Actemra starts working soon. The doctor doesnt want to keep me on the prednisone for some reason. I did notice that on my last blood work , my level has come down a little bit on the inflammation. I hope all are doing well today. I am new here but have gotten to know a couple of you a little bit. Thank you for all your help and support. I hope I might be able to answer any questions or be of some support here also. Once again, thank you ...
Good luck i just had my latest infusion on wednesday night the nurse stuck me terribly so i had to have 2 cannulas in. Otherwise i am ok had a quick call from my rheumatologist and my levels r down. Although i keep pickin up a heap of infections r u getting any infections too? prednisone is a steriod is y they don't let u use it long time. I unfortunately had to get off 3 medications so hopefully this doesn't happen to u. In 3 weeks it was a big struggle. I tried a support group in mackay where i live but i just didn't find it helpful so conversations like this really help. Take care
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I have PMR and GCA and have been on steroids for 6 months.My doc wants me to start Actemra infusion?
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