Anyone with feedback??Recently I had to chage pain control Dr!s well the first thing he did was change my meds which in turn sent me into severe withdrawel even with the new meds.It has since taken 10 months to only keepng my pain,spasms,etc, tolerable.Also he convinced me that this implant would give me a better quality of life and hopefully I would be able to taper off of the majority of maintenance control meds.First I had the test implant for a weekend,but since no one had explained anything to me I did not have a clue what I was lloing for to happen.But believing he knew more than I I proceeded with the permanent implant a month later.So now my pain is back with a fury but my legs that had not given me any problems for the past 5 years are also keeping me up night after night jumping,cramping,spasmsing etc.And where I had been able to walk for a decent period of time it is physically impossible now.It now again takes me getting up and down at intervals to even prepare a meal.I would love to know others out there if anyone has had this implant and what in fact there results have been?Thankyou for any help and insight you may provide.Kathysbest
The thought of being pain free versus having a wire and battery pack inserted sounded good to me. My DR had recently put me up for the inserted electrode and due to certain circumstances had been rejected by the medical office that does this procedures. I am really unhappy hearing about your experience. I decided not to do the implant. Obviously the device has taken your health from something that was controllable to more pain and spasms. I know about the pain and spasms that you are going through. I was in a car accident and I thought I had just bumbed my head so I didn't go to the hospital. An hour before my shift (midnite) ended on that same day I started getting this excruciating pain going down from my neck to both arms and fingers particularly the ring fingers of both hands with a good portion of the pain on the right hand and arm. Now its four years later and I am fully disabled.
And this was for a bump on my head? Some days I think is my quality of life good enough? I had that question put to me about it concerning the implant. Ultimatly you will have to decide what quality of life you want. But to be used as an experiment for a"new" procedure with no explanation as to what quality of life will be after the operation well is a question you have to ask your Dr.Just remember it is your body not the Drs. Those spasms are horrendous. I get them in most muscles on my body especially back and lower legs. For ten to twenty minutes I usually just curl up on the floor untill they stop. Just remember it is your body and always try to get different opinions from as many specialists that you can. You want to improve your quality of life not experiment with it. Best wishes to you and there is always someone here who will listen and maybe has gone through similar procedures.
Hello to Kathysbest & Hello bnagoh;... my name spelled backwords= B. HOGAN
I just came back from a long cold walk. I had to calm down. This shit really upsets Me , and these effen! Drs. get away with it over and over again,and I know this as I not too long had a short and very unfriendly conversation with My little Sisters Doctor as too what might happen to him should He so much as touch her back with a scalpel or any other wierd devise he / they [there's 3 of them] might think up. She's got good insurance and they know it. She's good for appx. $250,000 divided 3 ways , and they know She's in pain , they have browbeat Her, they've conned her and they've got her convinced that without that operation, and whatever that device is, she's going to end up a cripple. I went over to Vt. [home state] again and got Her a Lawyer but there was something about him... he just gave Me a bad feeling so we dumped him, went home and decided We would contact our Spirit Guides [hers is Carolyn, and mine is Demetrius... He's much older :-)] for help. That was a very good idea as next day, the very first doctor we visited they clicked. He's a little bitty Guy with a big grin [about 5' 4] and She's a little bitty Girl [4'9"], and His brother in law is a lawyer ! I love My Spirit guide ! !
I hope that through this little story, I might convince the 2 of you to fight back. YOU HAVE BEEN CONNED ! ! ! It sounds to Me like you both have been PHYSICALLY HURT,and you both have been MENTALLY ABUSED. Each one of you get together with people you trust and people who will support you... Mother... Father... Sister... Brother... Aunt... Uncle... Brother / Sister-in-laws, whomever , and GET ANGRY ! ! and GET MOVING ! !
Print out the posts you have shown to us. Hell print mine if it'll help and start talking to and visiting lawyers. Most lawyers will give you 30 min. to an hour free, to discuss your case, and if He /She informs you that you don't have a case, it won't cost you a dime. Do not fake it in front of your lawyer... and SMILE , it shows confidence. Can I help you? If either of you have a question ask Me and or Post it. So far... ChristeneATU... Subzero58... and ..Sacosam have discussed, very basically, forming a protest group for a White House [Washington D.C.] protest. This is criminal this shit has got to stop ! ! ! Sacosam
Sorry for not answering your question. I have heard of this type of stimulator. Personally, if certain medications were working well for you, why wouldn't your new doctor continue treating you with what worked? You are NOT his personal guinea pig. Tell him to remove the darn thing and get you on medication that works for you. The only advice as far as meds go, try to stay away from the short term breakthrough meds like vicodin. They are not good for your system. They never give your brain's system time to regenerate and they harm your liver, kidneys, etc. Especially if they contain high amounts of acetaminophen. I would request a good sustained release opiate. If you are prescribed a good dosage, you should rarely, if ever, need breakthrough meds. I hope it works out well for you. Your doctor should remember the first line of the promise he made when he swore to uphold the Hippocratic Oath... First Do No Harm...
Hi Kathysbest; I just need to know something , selfishly , for My own head . WHY ? ? ? According to You , you had the world "RIGHT BY THE ASS" and you let go of it. Where was your reasoning ? NEVER!!! LET A DOCTOR SELL YOU SOMETHING THAT HE / SHE is going to profit from... NEVER ! ! Sacosam
I have to add my two cents, so I'm sorry if I step on anybody's toes. I have had to change pain doctors FOUR times for various reasons, and NO, I am NOT an addict. In fact, I try not to take as much meds as allowed. I can't do it all the time, but once in awhile, it makes me feel better knowing that I don't freak if I don't get a pill. I know I'm not an addict, as if the meds are working, I don't ask for more. I had one pain doctor who would NOT give me any break through meds. Obviously, I was undermedicated as I was in constant pain. The problem was that I originally had told him that I hated to be on all these narcs, and i would really love to get off of them. There is a think called opiod rotation which allows you to lower you dosage but actually get better pain control using a different opiod. Unfortunately with that doctor, he lowered me too much, and refused to up me one or two doses as "I wanted to get off these narcs".
It never crossed his mind that my disease had progressed and caused three compression fractures in the same vertebrae, and had four discs in my back!! I would try a stimulator if it meant not being on pain meds as much or not at all. One other thing. Your surgeon has made a mistake!! Go to another surgeon, tell them the problem, and have them check. If the trial outside your spine worked, then the surgeon hit nerves which is what is causing you your present problem. You need either to have the device moved (If you still want), or taken out, and the pain should go away. THEN go see an attorney.
Secondly, your doctor may have changed your meds because you were on too much. I never understood that until I had surgery being on HUGE doses of methadone. Being cut open eight inches, I had reached opiod saturation. In other words, no pain med it the world would help my pain. I begged to be killed. Each second seemed like HOURS, and the nurses thought that I was a junkie, and would NOT call my doctor. I just wanted to die. Now I know what a "10" in pain means. I couldn't talk, I sweat so bad that they kept insisting on changing my sheets and gown, and my blood pressure was so high from pain that they had several nitro patches on me so that I wouldn't stroke out. That is why I learned about opiod rotation.
Thirdly, even if you are on the most PERFECT dose of narcotics, if you a truly in CHRONIC pain, you will need breakthrough meds at some point. I use from 0-3 daily. Moving, and doing things causes those nerves to get irritated, and you can't always know how to move just right not to hit a nerve.
Another reason your pain meds might have been changed is because you were on methadone. The best pain doctors who keep up with the science know that meth is not the best med to be on for chronic pain. Thus suboxine and a few more new meds to help.
Finally, there are other meds that help with pain besides narcotics. Antidepressants, seizure meds, etc. can do wonders to raise your pain tolerance. Good luck! But get that stimulator FIXED!!
I have a MedTronic implant. It was put in in the mid 90's. It never did anything for back pain but did help pain going down my leg. I guess it wasn't put in high enough to do anything for my back. I'm sorry to hear its not working for you. Like most of us you need narcotic therapy and maybe some physical therapy. Is your device turned off and on by a magnet or some other means? With mine I have found that anything magnetic will turn on. Mine was set by a doc at a unusually high setting that I could not adjust. Using a weedeater turned mine on one day and I dropped to the ground. Have you ever been shocked by anything 120volts? That's how it felt. They really need to educate patients on these implants. I'm not trying to scare you, just saying. I hope you get better thru whatever means you and your doc try. Maybe someone on this site has suggestions. Lots of my pain education and moral support here.
I'm gonna add my 2 cents. I too was in a car accident, didn't go to ER as I thought I wasn't hurt. When pain became so excruciating I finally went to an ortho specializing in back injuries. First words out of his mouth, surgery. He told me L3 was bulging and L4-L5 had herniated. Specifically stated it was due to car injury unless I had been hurt in any other way, which I had not. I was also told I did have degerative disc disease. When I asked if there was anything that could be done first that was not as invasive as surgery, he scheduled me for MRI then epidural. On the day of the procedure, I did not rcv the epidural, instead of getting it I received someone else's steriod hip injection, while he was ranting and raving about a Dr. he was furious with. I was told that I shouldn't have any after effects but if I did to call immediately.
(I didn't even realize I hadn't rcvd an epidural as I did no research, just trusted the dr.) If anyone has had an 18 gauge needle inserted all the way into their hip full of steroids, then you know the excruciating pain you will experience for 24 to 36 hours. His nurse took all my calls, was very concerned, even stated that she couldn't understand why he had not called me, and he never did. (I got my records later and went to a neurosurgeon.) The orthopeadic changed my medical records, (I have originals showing him listing herniated disc due to car injury). Long story short, consulted lawyer, he took the case. In the interim I sought treatment with a nuero surgeon, he verified that no epidural had been given to me. Went through months of PT, then 3 real epidurals with the 4th piggy backed a week after the 3rd. When nothing worked, he very much wanted me to have bone fusion surgery. After researching this procedure and discussing thoroughly with him, I could not see the benefit of risk of only a 50%/50% good outcome. I opted for the laminectomy. During all this time, my attorney assured me everything was being done, which was a lie. Both doctors changed my medical records, even the neuro surgeon, he took out that he had verified that the ortho had no given me the epidural. Long story short, 4 days before trial, lawyer dropped me for another case, stating "conflict of schedule." After almost a year, the atty had done nothing but take my deposition. These docs could not be touched in this town. After laminectomy, started having Cerebal fluid leaks at surgery site, 2 more back surgeries to repair my dura, as the leaks would not stop. On third surgery, my digestive system stopped functioning and was put on NG tube for 7 days, at which time they stopped my Effexor XR and Xanax, did not call my psychiatrist in, even with me asking for him and explaining I could seize. Well I did, I had a TIA, which was confirmed by another neurologist. Still nothing I could do. All doctors are going strictly to computers with no paper trails for the sole purpose of preventing malpractice suits. So here I am, in daily pain, weak right side from seizure. Went to my family doc about pain, and he referred me to PMgt. Here you cannot get in PM without all med records and referral. First thing the PM doc wanted to do was insert back stimulator device, giving me a sales job to the point I actually signed the papers, then the epiphany HELL NO. No one else is doing surgery on my back. They started me on low dose pain meds. Then the pitch started coming for the ablation nerve burning treatments. Researched it, certainly was wary, and Bloggermom let me know that she had had this procedure with no relief. They are still giving me the sales pitch every few months or so, but I won't change my mind. They do help me with meds, and so far I have not become addicted, but of course the fear is there. None of them make me "high" but some have helped to keep me out of that 7 to 10 pain range. My lesson learned: I have two insurances, Medicare and BC/BS, never ever think that when some practitioners see that its like a no holds bar lets just do any and every procedure I would qualify for, while these drs. are owners in the clinics/surgery centers that these "small procedures" are performed in. And if the truth is known most probably get "kickbacks" from putting these foreign objects in your body. My advise, get it removed, and never ever consent to any procedure that you haven't researched yourself, spoken with people who have had it, and know the odds of what to expect. You must be your own advocate. If your PM dr. refuses you meds, find another through you family physician, taking all your medical records with you. I know I've vented, and I apologize, but this subject burns my A$$ like a 3 foot flame. Sorry. I do which you luck with your pain, and again, I would have it REMOVED!
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