going for my first official Rheumotology appointment soon at a University Hospital Clinic... (never got officially diagnosed with Fibro) I don't know if the Doc is Fibro friendly or not, any advice, suggestions, wisdom would be welcome, thank you all in advance, mindy
I'm a Big Girl now?
- 5 Feb 2012 by Anonymous
- 7 February 2012
Yay Mindy!! Most (if not all) rhuemy's are fibro-friendly. Wear comfy clothing, and don't wear your 'last chance undies' as you will don one of those lovely hospital gowns.
You will be palpated and she will check all the trigger points for pain. If she touches somewhere and it hurts, TELL HER! I didn't tell mine as she palpated me, I thought I should just let her feel my muscles and shut up, wrong idea. (what an eejit I can be at times!!)
Take notes with you (anything you want to ask, list your symptoms, etc. Also, take notes of what she tells you. But the important one is YOUR notes to her. So sit down, have a cuppa and write every symptom, no matter how 'silly' it may seem, write it down!!
IF you don't like him/her, don't go back. You need to have a good relationship with your rhuem doc.
Let us know how it goes for you, and I'm glad you have this appointment, you'll get some answers!!
Hi dear Minda... just wanted to send u an upbeat note and wish you a very successful and positive appointment with your Rheumatologist. I do not have much experience with either one of these syndromes so really can't offer much along those lines... so I will remember you in my prayers that this doc is the ONE that can help you.
Good luck, many blessing and hugs... pup
Let us know the outcome... pup
Sorry that this post is coming so late... seems to be my life story, but all I can do to advise you is be prepared to be palpated from MANY, MANY different people. I think that's why they call them University Hospitals? They have to teach everyone at the university what to do at the hospital!! If you happen to have anything unusual about you, the more the people they bring in to ahem... LEARN!! Last time I went to the University hospital for scoliosis in my lower back, I had no idea that I couldn't feel my left leg... so... I woke up the next day with about 1000 pin pricks in my leg, from people poking me. "can you feel this, or this or this??? " OBVIOUSLY NOT, or else I would be jumping 10 feet high the way I do when you prick my RIGHT leg... get it/?? Just one small example.
Also be prepared to wait, and wait, and wait, because by the time the big guru finally comes in, you have already been diagnosed, and you are blessed with their presence for an entire five minutes!! That will be $486.58 please, and BTW, medicare is destroying the medical profession. It just makes them prescribe more tests so that they can get their just due PAY out of their meager salaries :-} Have fun!
Seriously, I hope that you have a very informative visit, and that you can get some ideas to help!
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