... last doctor I saw was a Chiropractor, who really listend and heard what I was saying to him. He took his time and examined me thouroughly,by performing a physical test called a tender point test on my body. My doctor said ,that he even tried to trick me ,but that he couldn't and began to explain to me ,that I have this condition called Fibromyalgia. This was the first time I had heard of it. He also said that,this was the only test to diagnosis. No blood work, but the tender point test. There are at least 18 tender points and if you have 11 of the 18 tender points, then you could possibly have Fibromyalgia. After that,I went to Barnes and Noble to get books on the subject and found out that in the 70's I also had it as a child and I just cried,because I remember going from doctor to doctor with hip, leg, and feet pain all the time. The doctors at the time didn't know about Fibromyalgia and just told my mother not to worry and that it was probably Growing Pains or Psychological and as a result, my mother ignored me and wouldn't beleive me after that. Oh did I tell you, I was born with a dislocated hip,which I suspect that I also had some Trauma to my centrel nervous system! As I got older and became more active the Childhood Fibromyalgia went into remission. In 1998, I was bitten by a Lymes Tick and that's when my immune system went down and slowly the Fibromyalgia came back and with a vengance ! It's frustrating, when doctors don't understand or are not educated in Fibromyalgia. The Patient is the one suffering and the commercials on TV , just don't do much Justice to the real and complicated condition of Fibromyalgia. All I can say, is just don't give up ! Pray and find the right doctor ,who will listen and hear what you are trying to tell him or her. And always do rescearch and ask questions from your doctor; never do anything without consulting your medical doctor,whom you trust. I also followed up with my Rhuematologist after my diagnosis with my new Chiropractor. I'm not cured and I have my set backs, but I keep plugging along at a slower pace and I've been accepting my situation and know that I'm not alone
English Ivy, welcome to the site. A lot of us have stories that mirror yours. This has been a common mis-diagnosed condition many times over. I am glad you have finally found some answers for all your pain problems. We have a great support group here for fibromyalgia, and certainly hope you will join in & add you comments. The best to you...
englishivy, first of all, i believe and feel for the pain you are going thru. alot of drs, are just a bunch of money seeking quacks who dont know a thing at all about chronic pain. keep looking for a dr, and if you have to fill out a form stating your last dr, tell them you never had one. hate to have to lie, but that quack just might make it hard for you. unless a person suffers the type of pain us pain patients deal with, they will never know, but ask them to walk in our shoes for a day, theyll be crying like a bunch of babys. look on the internet for drs in your area, even pain management drs. go to the er if its that bad and you will be prescribed most times pain medication, ask for a referal to any drs they could recommend. and ask for paper work stating what pain meds were given to you while at the er, and if it works, let the dr you find see the paper work.
should go good from there, sorry your having such difficulties. get better,keep comming back to the dc family, we are here to support you the best we can
Hi EnglishIvy! Welcome to Drugs.com!
Thank you ever so much for posting your story of pain & persistence that's filled with hope. It's very empowering! What a good feeling!
I don't have a FM diagnosis & don't really believe that's my condition, however, I would like to know what's causing my chronic pain & usually being so swollen all the time. I imagine it's something very similar to Fibromyalgia.
I've also been to different specialists & had several tests. My test results invariably end up being negative for any definite health findings or else just "inconclusive". When this happens over & over & over, it does tend to make you think that you're imagining all that pain for some reason or other & that the pain isn't quite as bad as you think it is. I'm going to a Fibro specialist soon & I'm hoping to start 2012 on a positive note.
I'm crossing my fingers, big-time! :) HA HA HA
EnglishIvy, Good luck with your journey as well! All the best to you!
from Wendy :)
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