... worken for me.My newest one is Neurontin, has anyone had any luck with this?
I was told 3 years ago that I have Fibromyalgia. Been on meds and don't feel as if any of them are?
- 18 Nov 2009 by Betty pa
- 15 Nov 2011
- neurontin, migraine, anxiety, pain, reflex sympathetic dystrophy syndrome, fibromyalgia, hot flashes
Added 20 Nov 2009:
Let you all know i started my Neurontin, wow this is weird meds, i feel fuzzy and like i am floaten. i thank you all for given me some very good tips. i know everyone has different affects with meds, so i will keep you all posted on this, take care .
This medication made me feel drunk as he-- all the time and have horrible nightmares and I received no relief what so ever from it. I do not personally know anyone it has helped and know doctors constantly prescribe it for some reason. Also the sister to neurotin, Lyrica is just as bad. many law suites out there on these meds so be very careful and watch your doses, keep a good journal, detail exactly how you are feeling both phyically & mentally right from the start as you begin taking it. I assume it most help someone with nerve pain as it is handed out like candy now, so do try it, but try it a lit'l at a time, at home, do not drive, etc, as you will feel weird & woozy. Pls try to some type of excerise in, and I know what you are thinking...
"I hurt to bad to do that" try water stuff, at they ymca or something, I promise you find some help from that, everyone I know that has forced themself to try has found some help, make sure they have run multiple blood panels as you may have some type of mineral deficiency, many fibro suffers find help in this way. Good luck honey, I feel your pain and I am concerned your meds are not much help, keep looking until you find some answers, your health is really in your hands, not the docs, do not give up. God Bless & Good Health... Momma N & Dad
I didn't have good results with high doses of Neurontin, Lyrica, Cymbalta and Namenda to treat my Neuropathy. Many meds are prescibed "off label" or not for the condition they were specifically approved to treat, but non-the-less have been approved. I would advise keeping a list of your symptoms including the time of day, activity level for that day and at the onset of your pain. Don't forget to note your pain level using the McGill Pain scale. Continue to seek information, as you are doing. Your book is a terrific help for yourself and any doctors you may need for further diagnosis/treatment. I hope I have been able to help you. I am interested to know more about your reason for taking the neurontin.
I have tried all the meds out there for fibro... The best thing you can do to help yourself is do some walking and do some abs workout to strengthen your core I have found this to be the best thing for fibro and also some medation cd's would be helpful...
wish you the best, Melinda
Neurontin didn't help my FM symptoms so we just kept at it until something did. The Lyrica was a godsend but you have to have your doctor buy into experimenting with the dosages. This best done in my opinion by a rheumatologist. The "fuzzies" will go away as your body adjusts and the pain will seem much further away after about two months. Give it time. I also have Osteoarthritis and a hip replacement so pain has been my constant companion. The best advice I ever received was not to fear the pain. We grow up thinking pain means something is wrong inside and we stop moving... don't! Go to P/T, swim, do what you can when you can and remember to take your magnesium at night.
I have rsd and neurontin is helping me. As my rsd has worsened, I have had to increase the dose of neurontin. I am sensitive to medication and let the docs know it. I started out on 100mg of neurontin. Then, over a 5 day period, I would take an additional 100mg (I would take 200mg's a day for 5 days) and repeat the sequence until I reached the 300mg dose. When my rsd got worse, I repeated the sequence until I reached 600mg. I would do the 5 day sequence for the night meds first until I reached the desired dose, then do the same sequence for the afternoon dose, then the same sequence for the morning dose. It takes a while to get the dosage up, but it did minimize the side effects. My pain relief kept getting better with each dosage increase. The doctors want to hit the patient with high doses of medication, when a high dose may not be necessary to achieve the desired effect, especially for women.
My doc normally has his patients start out with 300mg's of neurontin and quickly increase each days dose by 300mg until the patient reached 900mg's or higher 3-4 times a day. I think I would have stopped taking the medication if the doc had started out with a high dose. The side effects would have made the medication intollerable. The docs and I are also careful not to add or change more than one medication/dosage if they can help. This allows us to know which medication may cause an undesirable side effect. Too many changes at one time and you have no clue as to which medication is causing issues. I hope this helps. Keep us posted as to how it works out for you. My prayers are with you. Blessings!
Hello Betty pa,
I have been on Neurotin for my Lupus and my Fibromyalgia, it never did work, and the side effects were awful! I had a plethora of horrible side effects too many to even write out, however if you look up the contraindications you will get a better understanding what I am talking about, I probably shouldn't say this, but I cannot resist, if the pharmacy company that made this drug and the building they produced it at were on fire I wouldn't urinate on it to put out the flames! This drug has ruined so many lives of people I know everything including suicide to permanent neurological problems. I'm not a Doctor, however, I would ask for something different to take, as this is one Drug I do not trust, and would tell anyone the same thing I've stated here, stay away from this medication, it appears from all I have been through and also my friends, that you will be much safer trying something else. OK... Off my soap box for now, I wish you much health and happiness, and pray you do not have to suffer much more.. God Bless and Good Luck my friend. midwestma
- Neurontin Information for Consumers
- Neurontin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Neurontin (detailed)
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