... experienced many more symptoms. My endo told me not to freak out (I have a tendency to think worst case... ) and that this is very treatable. After an ultrasound he concluded it could be hashimoto's. I've been on levoxyl 50 mg for a week. When will I notice a change?? Should I be worried, need reassurance;)
hi, ashfab - you're probably an expert on this by now! but, if you're still concerned, let me assure you that, in the vast scheme of things, this is not a terrible disease at all - unless it is NOT treated properly or simply not treated. i've got hashimoto's - found out in december and started levoxyl. i'm only on 50 now - we're going very slowly, because i had heart symptoms from my hypothyroidism before i was diagnosed (which i no longer have, now that i'm on the levoxyl).
your "mild tiredness" would probably have grown to much more troublesome symptoms if you hadn't been diagnosed. i suffered undiagnosed for years and years, and thus have been disabled - i can now finally forsee a future. levoxyl is my little miracle pill :). as for how long it takes to notice a change - well, i saw a couple of symptoms fly right away in the first 2 or 3 days (but i had tons of symptoms). the next to be affected came at about 4 weeks. and each time the dose was adjusted upward, i noticed a little (remember that i'm going verrrrry slowly) bit more improvement.
but basically what i've read (and i've been tied to my computer since i was diagnosed!) is that at 6 months some people are at the proper dose and doing well, 1 year is more like it for most people, and some take 1 1/2 years (or possibly more in really, really tough cases). the biggest reason that some people don't feel well when their doctor finally announces that they're at a proper dose is that the dose is actually too low yet. be assertive with your doc, and find one who'll work with you if she won't. you're looking for symptom relief, not "ok, your tsh is exactly 3.0. time to stop dosing upward." my doctor looks for a target range of 1.0 to 2.0 in the tsh. some people go a little lower than 1.0. you'll be able to tell when you're at the right place.
if you haven't already heard this, there are a few rules to staying healthy with hashimoto's. 1) stay with the same medication all the time (i.e., don't let the pharmacist give you generic #1 this month and generic #5 next month and levoxyl the next month). 2) try to avoid soy, as it's the number one offender (called a goitrogen), in that it doesn't let your body absorb the levoxyl. google "goitrogen," and you'll find other foods that you can experiment with to see if you can tolerate them well or not, without giving you hypo symptoms. 3) take your levoxyl on an empty stomach (right when you wake up), making sure that you drink enough water with it, then wait for an hour til you eat. 4) do not take any supplements or anything (orange juice and cereal, too) that contains calcium or iron within 4 hours (each way) of your levoxyl, or you'll not absorb the levoxyl. 5) work with your doctor, by getting a tsh lab test every 2 months til you're at the proper dosage, where you have no more symptoms. 6) enjoy - it's just a little pill, but it does amazing things! (good grief, i sound like an advertisement. i'm just so happy to be finally diagnosed and on my way to feeling better.)
so, i'll bet this is old hat to you by now. you're taking care of yourself by taking your thyroid. keep it up, and the world is your oyster :).
- Levoxyl Information for Consumers
- Levoxyl Information for Healthcare Professionals (includes dosage details)
- Side Effects of Levoxyl (detailed)
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