today at my doctor's appt. I saw 2 pain specialist and neither gave me any pain meds can you believe it? It's what I feared in my past post about getting doctors to listen. the second doctor at least gave me 3 muscle relaxant shots (just lidocain with a steroid). she said the steroid won't kick in for a week. I told her I can't even get out of bed in the am, so how do i deal with this pain for a week? don't they care? i know they are worried about addiction, but this is ridiculous. My MRI shows foraminal stenosis from 2 bulging discs, so they know i'm not making this stuff up. any ideas? am I just being a cry baby? my only resort is to go back on my suboxone, it's the only pain relief i have in the house besides tylenol. thanks, any ideas welcome
Cathleen all I can think to say is what I am going to say because I really care about you, You are not a confrontational person, I think the time has come to ask the doctor direct questions such as how am I suppose to cope with constant Chronic pain, studies show that it is not a good idea for people to be in constant pain, it is wearing on the Central nervous system, I am sure you are (if not already signed a pain contract) I think it's time to be upfront and ask them what they expect you to do, it's not your job to have to treat yourself, if you are like me money is not easy and you pay them to make decisions to make your life the best it can be and I think the time has come for you to be more aggressive, Now I am not saying you have to be nasty, just ask them open and honest straight forward questions,
they would do the same if the shoes were on the other foot I may not have helped you but this is not what should be happening, you are going to have to stand straight and forget about being nervous because its your body and you deserve better from them, otherwise they are wasting both your time and your money, why should you have to wait and suffer, if they are going to continue in a mode like this then I think its time for you to seek someone else, get suggestions from friends, I know it isn't easy making a change but neither is it fair to deal with people who give you less care than anyone can expect to get I am so very sorry, I pray that the shot you got will kick in sooner than she seemed to think and I hope you know a lot of people are right behind you
Looks like caringsonbj more or less took the words right out of my mouth - but I couldn't agree more! Steroid injections of that sort aren't generally all that great for the body, and on top of that, those injections only last a short while and often can only be taken for a short period of time - so what's the point? I'd make another appointment asap and confront them whether you need to find another doctor who will actually treat you like a patient. It's so hard to do when you're a shy person, but if you can't do that, then just go to another doctor.
I was going through the same list of options that you're describing, and not very happy about it, had to switch my psychiatrist at the time, he looked at me charts, and was appalled at all of the options that weren't given a try. It was by total chance that my psychiatrist was also trained as a pain doctor (but really works under the title of a psychiatrist). The other doctor that I was seeing at the time for the pain was following the same basic train of thought. Tried to give me an SNRI on top of the 100mg of Pristiq that I was already taking. I caught that mistake after the appointment. Then he gave me the option of injections, and considering the sheer number of painful spots, it would have been insanity! When they'd rather shoot you up with meds and steroids, you've gotta either find out sooner than later if they'll treat you or not.
Also, something that you really really need to be careful of, is whenever you're prescribed a new med, RESEARCH it!!! I had a doc that wanted to put me on suboxone, and get me off the methadone, something that was at the time kinda working, and only needed to be increased. I know that for many many people, suboxone has helped their pain, but for me, I just don't want to take a med that if I get in a car accident, that I won't be able to be treated with additional narcotics. There are so so so many docs out there, all with different opinions, that you sometimes really do have to do a bit of shopping - and never totally believe what they say. I'm sure that you do your research, but just wanted to throw that in, as it's nice to know what's actually going on vs. what your told is going on. What they say is often slanted in order to get you to do what they want you to do (as my current doctor used to do at first, until I kept on calling him out - like Tramadol is a dangerous and highly scheduled drug - BS... but he's willing to give it a shot. Totally overplaying the med, trying to see if there wasn't any psychological aspects to the pain, when in fact, I was in pain, and he wanted to give me a practically useless medication for my particular situation.
Good luck to you, and hope that this pain literally as well as with the doctors works out sooner vs. later.
caringsonbj and jk13 gave you some great advice. I didn't think suboxone could follow someone around like that. When you were on the subs, how did it work on your pain? If it controlled it well, maybe you should go back on it? It's usually not prescribed for pain control but in your case, if it worked, maybe you should see the sub doctor again and let them know what's happened? I'm not sure what else you can do other than what caringson suggested. Make another appt asap and talk with them about decent pain control! Be firmer about it. Tell them you need to function without all this pain.You could also write a letter. Tell them although I was Rx'd suboxone in the past, I was under the assumption it was for pain control, not to treat opioid dependance. I had never even heard of this medication! I really wish there was something I could do to help.
Maybe if you just stay with these docs for a while, go along with the program, let them get to know you, they might change their minds and give you something for the pain. Please don't jump to the methadone. It's so hard to come off of. Do whatever you can to convince these new docs you are serious! No one should have a sub record follow them around and stop them from treating bad pain. Hang in there, Cathleen.
Cathleen, forgive me if I am being out of line, but I saw from your profile that you have had addiction problems in the past. Given that, how do you propose to handle pain meds if you find a doctor that will prescribe them? Also,I would imagine if a pain doc saw Subs on your record he would think you had addiction problems and in this case, he'd be right. I can't imagine you would find a pain doc willing to give opiates to someone who has addiction problems - it wouldn't be ethical. Why would you expect them to?
With addiction in your past it is likely that they were reluctant to give you meds but then again I think it is inethical to leave someone in severe pain. Some addiction specialists will treat pain as well as addiction. You would have to be willing to be well scrutinized, like frequent urine tests, possibly weekly pill counts by the doctor or one of his assistants to be sure you are sticking to your dosing schedule etc. You could look into an addiction specialist who treats pain or you can be upfront with the docs you have and tell them your situation, that you cant live in pain like this and would be willing to subject to close monitoring so they can be assured you are not falling into addiction patterns. Even with the history of addiction, if this is what you have, you should not be denied pain control. If the doctors are uncomfortable treating you for pain ask for a referral to someone who will. If they are pain specialists they should know collegues who treat addiction as well as pain.
while signing a pain contract and having prescriptions strictly regulated sounds like a great idea to "help" potential addicts, in the real world it is the the patient who winds up untreated and often dismissed as a whiner or worse, a drug fiend. the frustration of medical insurance, pharmacy personnel who play god with your meds, and the dr/office staff who consider your pain low-priority has sent patients into self-medicating with other substances or illegally obtained RXs. it is worth finding a compassionate dr who is willing to treat you as an individual in unbearable pain and not as just another med file with a past. good luck to you.
My mom, sister and I have a hereditary disease that affects pretty much every joint in our body. We have all had total hip replacements. My mother has had both knee's replaced and both shoulders. My sister and I will share the same fate eventually, only we have a added bonus.. our ankles too! My point is I know how you feel with the pain dr problem. You need to just keep looking. I know it is hell but when you find one believe me you will be so glad you kept looking. My sister has also been on Suboxone and some doctors were NOT understanding at all, telling her to take Motrin (obviously not someone that has a lot of real pain). Some of us have to face the fact we will ALWAYS be in pain on some level and therefore have to have pain meds to function at all. My sister is monitored closer, maybe an extra urine drug test or two and he talks in more detail about how she is feeling so that if any problem does arise they can address it early on.
She was told all of this up front and as long as she agreed, they would treat her. It's been almost 2 yrs now. I know for fact there are many others like him at least here in Georgia. I know states differ though. Please don't give up! Just know you are not alone. Good luck!
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