... After year and years of low back pain, I finally had it checked by my doctor. After tests were completed, I was referred to a "Minimally invasive spine surgeon." What is that? I was diagnosed with a torn, leaking, black colored disc. @ L-4 L-5. This M.I.S.S referred me to a pain management clinic. Went through the entire gambit of every shot, procedure, PT you could think of. I'll never forget the name, "Radio frequency Thermo coagulation." Spinal blocks were the worst. But once your numb, after 3 or 4 shots of "novacain-like" medicine, it's the pressure of the needles going in that was the freakiest part. This was 15 years ago. I continued to work, took my meds, went through more injections etc. Then finally, I was able to get on a PPO insurance plan. No more middle man. Or in my case 3 middle men to get to any relief. I made an appointment directly with a genuine Spine Surgeon! Not a M.I.S.S. I had to keep working so he kept me pain free until he said one day, we can't put off surgery any longer. Meanwhile I got a notice from the insurance company they are jacking my premium up to $1,100.00 per month! I had no choice but to drop it. I was going to switch back to the HMO but the period between when I was dropped and when I would pick up the HMO (2 weeks) I was in an accident (my first one ever) and shattered my mid spine. L-1 looked like a fireworks display on the screen. L-2 was just in 4 or 5 pieces. Sent me to the nearest hospital. Had to transfer me to another hospital where the spine surgeon was. All the time I am screaming for them to contact my spine surgeon. I was totally ignored. This "surgeon" was so intimidated by my fractures, he fitted me with a brace and sent me home after 6 days of horse shit pain control. Every day I would beg them to contact my surgeon. Nothing. My husband ended up calling him and he returned my husbands call on a Saturday morning. Go figure! A week end call from a doctor. After being released, the earliest I could see MY surgeon was 2 weeks. Not bad considering it's usually 6 weeks to get an appointment. When I finally hobbled with a walker into the exam room, he knew I had no insurance, he looked at my C_Scan and said, "I can't believe they sent you home like this! I called Dr. Payne (oh the irony) and he never called me back. Even the nurses wouldn't give me information. You were in room 311, right?" I was floored. I never cried so hard in my life. He had me admitted immediately to his hospital for emergency surgery. I need additional surgery after my vertabreas heal to remove parts of the hardware that are pushing through my back due to major muscle loss. I am so sick and tired of being sick and tired. I know for a fact that chronic pain causes depression. This surgeon is still taking care of me knowing he isn't getting paid. He said I would never work again and just got my letter today denying my application for SSI. Sorry for rambling... I had to get this off my chest. "Real" people are tired of hearing about it. I feel better already just getting this down in a visual format. So I know I'm not going crazy
Hi CristineATU, I know you want to hear a sucess story and I can't provide you with that but you can ramble on anytime, sometimes you just gotta vent! It sounds so horribly painful. It makes my problem pale in comparison. I think that back pain has always been a problem for alot of doctors. It's tricky to diagnose ( though yours is extremely well documented), I personally think alot of doctors are scaredto touch back pain. If they make a mistake of any kind their butts are in a sling! My advice is to try some at home relievers like the smell of lavender and chamomile, hot bubble baths, some relaxing music and even candles if you like. I believe a relaxed mind makes a relaxed body. It is a given that you need a pain reliver that keeps you comfortable, but that requires a good doctor, honestly first impressions are important.
How is his/her body language? how is that same doctors bedside manner? Lastly are you getting a good "vibe" from the entire staff? My heart and prayers go out to you. Hope this helped even the tiniest bit. You have to take care of yourself first, and put less important things on the back burner if you will. As far as being denied for SSI, they usually do that the first time now you need a lawyer ( they do not take any money until you have won your case), and it seems pretty open and shut... no pun intended. You are in my thoughts and prayers Fall Queen
Hi, Christine! Boy, you have my sympathy! I was initially injured August 2002, (bulging disc @ L3-4) and found an orthopedic doctor in Dec. 2003, after my initial work injury that occurred in July 2003, where I injured my L4-5 & L2-3, and in April 2005, I started Lortab 5/500, due to my worsening pain and I was in a car accident in Feb. 2008, injured my L5-S1!!! Also in March,2008, I was parked in a CVS parking lot when a 17 year-old backed (more like slammed!) his mom's car into my rear bumper! Unfortunately, I was in the car and more aggravation to my low back! Presently, I'm taking 10-500 mg of the Lortab. Through the years, I've moved up the ladder to 7.5/500, 7.5/750 and 10-325 mg (Lortab). I take my 10-500 3x a day and it helps to a certain point. Numerous p/thrpy has done no good, only aggravated my back, and I went to aquatic therapy and I almost screamed in pain! I suffer severe depression, irritability, and have a high anxiety level.
I'm so sorry I have no success story to post, but it feels good to be involved in a support group with wonderful, caring, sympathetic and understanding people! Just what I need. This support group is my light at the end of the tunnel. If you ever want to chat, I'm here 4 u!! God bless!
hi chrisi, well today has been nightmare. this damp rainy s@it outside we got goin on in chile phily makes for nice weather if your a duck needen a drink. here's my suc ess story"i was born a red headed poor black child,never knew my dad my mom the little that i know of her was a hooker on the mean streets of the city of brotherly love. my mom was white and my dad was black and her pimp. i never got to go to school cause mom wassin and out of jail most of the time. i grew up in st frances orphanage over by the under pass of 95 it runs right in back of the only window we had to look out of.us kids used to play a game pointing to cars on the highway saying that's what i want when i get a car.instead of going to school we would hideout near the railroad tracks and through rocks at the trains when they went by.there was a tunnel down a ways from where we used to play.
that we could hide in when it was raining or snowing out.my best friend danny and me used to put pennys on the rail to let the train flatten them out n sell them to other kids for a quarter.good profit for a kid who didn't get any money from the nuns.one day danny put like 5 pennys on the rail. when we saw the trains dannys penny fell off the track i tryed to put them back on before the train got there he thought i took his pennys off n when he was screaming at me i pushed him away n he fell back i swear i didnn't push him.when the cops got there they said it was my falt n it wasn't.till this day i hate march 31 that was my friend died. the only day i hate more is the next one. u know what day it is? april fools
Hi Christene: "God Bless You Girl"! Your story is the reason i've been begging My "Little Sister"! [she's 4'9"] not to get back Surgery, at least until I can get together with Her. Im sure that somewhere there must be a person who has had a completely successful back Surgery and is now somewhere in the U.S. dancing, doing backflips, and swimming with the dolphins ,but I sure as Hell have never yet heard of a totally successful back Surgery. It sounds to Me like you finally found a saint for a Doctor though. After what you've been through , you deserve it. KEEP FIGHTING KID ! ! Sacosam !
Wow, you got a lot of responses! I hope that encourages you. I have a sucess story for you. And somewhat of a suggestion- if you care to investigate.
My story begins with the fact that I was born with a connective tissue disorder. Connective tissue is like the glue that holds our bodies together, so if it's not good- EverythiNG goes bad. Usually, people with EDS have such flexible joints they are known as the circus freaks and I certainly fit that bill- but more than that, for me- it affected my organs. Which led me to my first and only major surgery- for mitrol valve regurjitation.
Prior to the surgery I had always been athletic and had just started teaching yoga- which seemed like the perfect part-time job for me- and since my surgeon assured me I'd be superwoman again 3 months after the surgery- I BELIEVED HIM!
Two months following my open heart surgery I started losing control of the left side of my body, toppling over and having seizures. Following this, I would be unable to move or speak for approximately an hour. Since I have scolliosis and herniated disks in both my lumbar and cervical spine being stuck in only God-knows-what kind of position on whatever hard surface I landed on was Ouch!
No doctors helped, at all. They couldn't figure out what was going on thus relagated me to the psychogenic seizure category. I knew they weren't right so, doing my homework- after a year with daily seizures and losing almost all of my mobility- I went across the country to the Chiari Institute. (Chiari is a brain malformation that is frequently found with EDS) The Neurosurgeon there was the first person in 20 years that could make sense of my journey. The diagnoses alone, helped me- I also used an Aspen cervical collar and a brace from hip to base of skull- but quickly discovered that the loss of muscle from depending on these braces was something I needed to keep at a miniumum. I was advised to have 2 surgeries-- one to clip the tethered spinal cord and the second to fuse the cervical spine to the skull.
Unfortunately, I did not find any good doctors to follow up in my home state- and my seizures went from bad to worse- neurological decline as well. My legs turned inwards from the hip and what little walking I could do was by dragging one leg after 20 yards- witH a cane and my brace. My seizures began to be grand mal in nature and I had them multiple times a day- all of this went on for five years.
The last videoed EEG I had- and the last ridiculous psychogenic seizure dignosis was the final straw for me. (here in my state) I started immediately following the hospital stay to go off the many sedating drugs I was on. Lo- and behold- the seizures stopped!!! I finally got to an orthostatic specialist who advised my (new) cardiologist on how to treat another one of my rare conditions that is not readily understood. A good old basic beta blocker helped a lot. And thirdly- as I continued to get off as much medicaton as possible I began feeding my body tons of Omega 3's and antioxidants. After hearing a lecture on the Moxxor that I take I trippled my dosage of it and I can now walk- normally- with straight legs and no drag!
-over 3 miles. I no longer need a catheter, or a walker, a cane, or a helping hand- and only use my Aspen cervical collar for car rides and for sleep.
All of this to say- yes, I tried everything, and suffered a great deal. Yes, I still have pain, but being able to move again makes all the difference in the world. Immobility not only increases the chances of depression, it increases the pain itself. Don't give up! And, if you're interested- the Omega 3's in Moxxor are formulated for very helpful help with pain as it relates to inflammation. It can also help the Central Nervous System, the brain and the healing process in general. You can private me if you'd like to learn more.
I wish you all the best-
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