I need to 'whine' a minute...could use some encouragement?
- 3 Sep 2011 by Jillynnie
- 7 September 2011
- cymbalta, elavil, suboxone, anxiety, fibromyalgia, amitriptyline, anxiety and stress
I was quickly diagnosed with fibromyalgia by my neurologist last month. He put me on 50mg Amitriptyline (Elavil), .1 Klonidine at bedtime, and a small dose of Cymbalta in the am. I am on 2mg/.05mg of sub films because I requested help from pain killers and was done with taking them and them taking me! I have been underweight for almost a year. I am 5'10" and was down to 125. I crept back up to 130 and am now at 135. I have several frustrations going on now. I am continually searching for words that I cannot remember and are very common words. I wrote this off as fibro fog. But, I thought I would google that last night and it got me to following a lot of threads. Now I am even wondering if i have fibro. Although I have so many symptoms or had when I was diagnosed, the only thing I am suffering from right now is the occasional cramping in 'target areas', twitchy muscles, and this excruciatingly maddening inability to pull up simple words. Maybe the Subs are helping with my fibro?? Or maybe I don't really have it?! I continually crave sweets and have eaten approx 6 full sized blue bell cartons in the past 4 weeks. That is the only thing that sounds good to me. I know I needed to gain weight but at this rate I am going to be so overweight and probably diabetic. I don't want to sound vain, and please do not hear that I am, I am just SO frustrated with my situation, diagnosis. I had to quit my job and cannot go back to the neuro for a while until I can get my cobra insurance started. So..that's my 'whine'. Sorry guys. I am just so ... I don't know...
I had a super day yesterday, had a slight anxiety attack which seems to happen EVERY time I try to taper my sub use. I almost immediately get the shakes, high heart rate and anxiety attack as soon as I have reduced. I mean, full blown... one minute fine... next minute NOT FINE!! But, yesterday was good and felt and sounded better than I have in such a long time, but today I woke up feeling just... down, I guess.
Again, sorry. I just had to get this off my chest.
If you got this far... thanks for reading and putting up with my rant. :/
Best to all,
Hang in there girl. Remember as you reduce the subs, you won't actually feel the reduction until 2 to 3 days after the reduction. Not sure when you are feeling the symtpoms but it maybe more anxiety than actual withdrawal.
As far as the fibro, can't answer you on this one. Have to wait until you get a re evaluation from the doctor. I know for some people the symptoms can come and go, so you might be experiencing this.
I just want to encourage you to hang in there and keep posting. We are here to support you and are willing to listen anytime.
Hi Jillynnie and Laurie. In and out of the site, and well, Jillnnie, as Laurie knows me a bit, I just had to post, say something. Thats . Don't know a thing or lets be kind to myself and say very little.about subs and fibro. Just what I read from Patti, Laurie, DozzBaby. You know. Most times all I can say is, well, you're not alone. I've my own handicap (golf on my brain today) ha! Its ok to ask for an ear and to vent and or both. I'll share this. What keeps me ticking away here, is responding to questions. Its a lifeline of sorts. Helps me to think things out. Put myself into perspective. Pledge is on a roll... get the hook... off the stage... people are heading for the exits en mass :-0) Remember Jillynnie, yesterday as you said was good. so, tomorrow, and many other tomorrows will be good and much better than that. Talk to you later friend, ha! We'll see Laurie, thanks for the danish. Oh, if I don't happen to post for some time, its that I'm catching up on a few chores, then theres golf. Then time to feed the pups etc etc. Pledge
Hi dear Jilynnie... I am sorry u r feeling down... now it is my turn to try to pep u up. If u do indeed have fibromyalgia it can b a very frustrating syndrome. A re-diagnosis may indeed b what u need. It can be a very subjective diagnosis. Instead of a neurologist u might want to c if u can get into a good rheumatologist... did the person who diagnosed u do a 14 point pressure site exam on u? From my understanding the 14 points need to be there for a diagnosis. It is certainly documented that the "fog" of which u speak does exist. If u r taking the klonopin every night... it is a benzodiazepine and they can interrupt your REM sleep therefore contributing to the fogginess that you are experiencing. If u need it to sleep, then u do... but if u don't it might be a good trial to do to c if your fogginess gets better when u don't take it??? But I would definitely recommend getting a re-diagnosis from another doctor... a good rheumatologist.
As far as the weight gain it is also documented in the literature that Cymbalta causes weight gain. Do u think the Cymbalta helps your pain... if not u might want to revisit whether u indeed need to b on it??? It does not sound like u have a weight problem but I understand your concern if 15-20 #'s have come on quickly... it could b the Cymbalta attributing to that... maybe also the Bluebell!!! I love bluebell... grew up 30 miles from where it is made... yummy!!! Don't worry about being "vane.". We women are programmed to always worry about our weight!!!
If u can tolerate it, some cardio exercise could really help with the mood... boost up those endorphins. Other palliative measures... massage PT could also help your discomfort.
In my opinion I would not worry to much about trying to wean from the sub at this point... I think u should worry about trying to get this fibromyalgia, or whatever it is, under control before having to deal with something else like weaning... that just adds on another stressor.
You have been so encouraging of me that I want to be there for u and add some support. U always get on here and offer up something sweet and encouraging to the DC bunch... you had a good day yesterday... so try to realize that there are good days out there. This day will be behind you in a few hours and you will have a GOOD day tomorrow... yes u will!!! That's an order!!! And if u don't come back on here for some love!!!
Try to maybe skip the klonopin tonight and c if any of your fogginess clears. Many benzos are lipophilic... meaning they like to hang around in our adipose for a while, hence make us groggy throughout the day... foggy.
So... maybe give that a try. I am now at a loss for any more suggestions.
Try to stay positive, take a bubble bath, watch something that will make u laugh... more endorphins!!!
Will check on u again later to c if u feel better. We r all here for you... chin up gurl!!! And plz let me k ow if any of the above helps u out...
Good morning ev1. Hope this finds you well and rested on our long w/e. Although I messed up my strip (and all I could see was dollar signs as they are about $10 a pc now!) I am going to have a great day! Slept very well without the klonipin (thank you, Pup!) Looking forward to a great day! Thanks for all of the encouragement yesterday guys! Using lots of exclamation points, which reminds of just one more thing me and my Sweet Lemon have in common. Miss that girl! Ready for her to be back!! :)
Hope pledge and pup had great games and shot a low score! :)
LOVE to my DC fam!
I liked the plan:
Stay on sub at prescribed dose.
Take less cymbalta each day.
Remove klonipin for tonight and see how I feel in the next few days regarding fog.
Get PT massage for stress/anxiety, etc
I hope it is going well. It is so similar for all of us to have those days. It happens. I have 2 or 3 really good ones then one filled with depression and anxiety. Amazing. We have to keep the end in mind. One of the 7 habits by Dr Covey.
I hope today finds you doing well I really do. You can whine anytime and i will be here to support you. i just returned so it took me longer to reply then normal.
you are in my thoughts.
Good morning everyone and thanks for your comments. Thank you, Cody. Glad you got a break from the computer and hope you enjoyed your holiday.
One - I am totally sorry, but accidently typed that I was on Clonidine with a K and therefore confused you guys along with myself and was thinking Klonipin. I WAS on Klonipin for serious bad anxiety days and Buspar for regular anxiety days, but have been off of / out of the Klonipin for several days. Two very different things and so sorry to cause confusion to you all AND to myself. Anyway, I googled if I could be experiencing w/d from Clonidine and the answer was a big yes! It basically backfires what it was made to do for me and my bp was going up. I felt extremely anxious yesterday and even had to go into my room for a bit. Told my husband and daughter that I didn't know what was wrong but I wanted to be alone for a bit. That is when I googled whether Clonidine has wd side effects.
I took one after reading about it (it says to never go ct and I had gone two nights without taking it.) and about 30 minutes felt oh so much better and was able to join the family again. I will try and taper this down. I want to not be on so many pills... they have been in my life for so long off and on. But, I also have to come to the realization that I am probably in for some, to an extent, for the rest of my life. And, I am going to be okay with that. I don't feel like I am in an old body anymore (most of the time now). The subs and the meds I am on are helping with the fibro and other things that I finally feel young again. And, THAT is worth something, right??
Second thing - I am asking for prayer for my daughter and family that live in the Austin/Bastrop area. If you have been watching any news of late you are aware of the fires. My daughter left here (Seabrook/Kemah area) this morning at 6am to get to her class at ACC and she has been rerouted a few times. I just got off the phone with her and she has made it to Austin and will be able to get to class. The update is there is ANOTHER fire near Lake Travis that is only 20 north of her and the winds are blowing SOUTH! The good news is the winds have died down. Please pray for the firefighters to have the strength and health to maintain their vigorous fight and for the families that have already lost their homes. (over 500 homes so far) And, also that the fires will be contained today. To date over 3.2million acres of Texas land has been burned since December. And, this fire is 9 miles long and traveling fast!
Thank you DC family!!
Much LOVE and hugs!!
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