I need some help!! I am not sure what's going on but I am in a bad place?
- 6 Jan 2012 by tlcandmore
- 19 Jan 2012
- oxycontin, depression, pain, fentanyl
I don't really know where to begin. I've been in a tremendous amount of pain this last month. My pm doc switched me from OxyContin to Fentanyl a couple of months ago. The patches seemed to be helping for a while now they are just NOT!! I have a feeling it may be because the pharmacy switched brands. They switched me from the gel type to the Mylan. I like the Mylan better because it is smaller and seems to stick better but it is just not controlling my pain. Next week I go back to the pm clinic and I can switch back to the gel patches then. I'm just not sure that's the problem.
That's not the biggest issue I'm dealing with though. I can't seem to get out of my chair for more than a few minutes at a time and that's only if I absolutely have to. I am in a really dark place right now. I know depression goes hand in hand with chronic pain but I can't even make myself care about trying to make it better. Maybe I need to get on an anti-depressant. I'm just so tired of trying to be okay. Does that even make sense? Right now I just want to give up. I know that sounds pathetic and I'm ashamed to talk to anyone in my family about it. I'm also having panic attacks (or something) where my heart starts to beat 90 miles an hour and I get real shaky. It happens anytime I try to talk about this or even think about it. The last 3 times I've been at the doctors office they've said my heart rate was up around 115 - 120. That's just when I'm trying to talk about my pain issues.
Anyway, I'm not sure what's going on or why I'm even writing this post except that I'm desperate. Any suggestions or advice would be welcome. I could really use some prayers as well. Thanks to all my friends here. I hate sounding so needy. I've always been a really strong woman but I am at a loss.
Love and hugs to all -Terri-
Added 6 Jan 2012:
Hi wanted to give you guys an update. I did talk to my pm doc today. He finally called me back. He is calling me in some more bt meds until I see him Wednesday at my appt. I'm about to go pick them up. I'm still having a pretty rough time of it but will keep you guys informed. I will try to respond to you all individually a little later. I can't tell you how much it means to me to have such good friends here that really care. I am truly blessed to have found you guys. I love you all. Big hugs and TTY soon -Terri-
You aren't a weak person, and it's good you're telling us because I think I have a few answers. Maybe. First, if you have anything for BT pain use them to help not be in such pain. But call the PM clinic tomorrow and ask if you can do it. Me personally, I just would, but it's best if they say OK.
I only used the Mylan patch but something like this happened to me also. Luckily I had an angel for a doc. I used up most of my BT meds until he switched me to MsContin. However, folks on another board urged me to try a gel patch before I quit Fentanyl. Maybe I should have. Since you know they work, go back to whichever brand you had.
The Fentanyl isn't getting into you. I'm pretty sure of that. I just don't know why. So think this through with me. You're a regular here and for quite some time, I think. What happens when we cut our dose drastically? First the pain comes back. But then we feel depressed. Almost all opiates tend to make depression a little better. Even if they don't, going into wds causes depression. I believe you feel so depressed because most of the Fentanyl isn't being absorbed by your skin. When it happened to me I had 2 of the 75 mcg patches on and I felt no pain relief. Finally, heart rhythm gets disrupted when opiates are withdrawn. A fast rate is common as is a rise in Blood Pressure. This can be dangerous. Do you have a BP monitor. Keep a check on your BP and rate. If both go high and stay there ask to see them tomorrow. Or go to an ER. I don't know you Terri or your history. Only that you are always here. So especially if you have any heart ailments at all, don't ignore heart symptoms.
Keep in touch with us.
Honey, I'm so sorry you are going through this, but know that we all love and care for you so very much. Is there any way at all that you can call you're pain dr. and tell him it's an emergency and you need to be seen tomorrow instead of waiting? And you may need to tell him or you're other doctor what's going on with the anxiety and be put on something for it, with what you are saying is going on. Please don't wait, if you can get into see him sooner is my opinion. I had problems with the Mylan's staying on and had to tape them on, but you say they are sticking ok. Don't feel bad about writing to us. One, that is what this site is for, but two, that is what all you're fellow friends are here for too. To listen and give you advise, because we care and love you. Please let me know if I can be of help in any way. I allready pray for you every day, but will say extra prayers for you, my friend, and hope you get to feeling better soon. And I pray you can get into the doctor sooner too. You are in my thoughts and prayers and I love ya girl. Ruthie
These are the situations you let your doctor know. I too liked the gel better as it seemed to make a difference but they don't stick well etc. The other issue, you may need to increase the Fent. Depending what you are on. I was on 25 patch for 3days, I was recentlly uped to 50 every 2 days which has helped. I take norco for break thru pain. And I am on wellbutrin for depression. This combo has worked well. I too had suffered the anxiety attacks it sounds like your having. I was treated with zanax for awhile then weened off. I have one once in awhile but not nearly like I was. Depression goes hand in hand with pain and depending where you live you may also be suffering with the winter blues. My pain always increase in winter, having no family to talk to or be around, the holidays and the dark gloom of winter always tends to get to me this year has not been as bad. I had a bad day today but there's another cold front coming in and my body plays weather woman the day or 2 before. I wish you luck and reachingout here will help as those of us that suffer understand what your feeling.
Hey Terri, just got your post, let our love surround you and know this will pass. I don't know about those meds but you already got great advice. Will be prayin and sending LIGHT & LOVE TO YOU, hang in there girl, hugs, mindy
Hi Terry! I just got your post too. I am so sorry you are feeling so bad. I agree it could be the difference inthe patch. It could be if your pain isn't being controlled, you can get feeling depressed. First I would either switch back to the gel brand if they seem to control the pain better, but you need to talk to your doctor about all this. Maybe a low dose of xanax would help these feelings you are having. It's either like a withdrawal effect because your not getting enough med, & your pain is out of control. I get those feelings some of the time. You are not alone. I have an appt. this morning with pain management doc, or nurse practioner who write the scripts, & they have an oncall physcloogist there too if I ever need to talk to her. So far I have been ok, but I do know from where you are feeling.
Was the oxycontin not helping your pain or what? Why did he change your script? What do you take now for breakthru pain? They all are downers, altho' usually if we can get the pain level down that alone brings the spirits up some so lets hope that is what is going on.I wish I had some better advice for you. Call your doc & explain what is going on right now. Maybe a change or different meds could help you thru this. I wish you the best...
Hi tic,I am so sorry you are suffering like you are.I recently stopped most of my meds. Because I was reacting to them differently and depression reared it's ugly head.I have since talked to a psychiatrist,once a week and told a lot of my close friends.I know you need to get relief from your physical pain and you should tell your pain management dr.that your pain patch is not working and insist that he works with you until you are comfortable.However,if you think that same dr. Is open to a discussion on your depression please talk to him about this.if not then please contact your primary dr,u should anyway,and tell him-her- hoe you are feeling.you are a strong women hon,and the fact that you posted this tells me you need some help now...
so of course we a dc are here for you and share away,but please get some one in the professional field,someone you trust to listen to how you are feeling,I know you are going to be ok,but part of getting better is asking for help,something I try to avoid... never works out for me when I hide,let it rip!you can do this and you DESERVE to be happy and somewhat pain free,I'm on your side,big hugs,c
Terri, my sweet,
It's no wonder u r flipping out. If I were in that much pain with no relief in site for a week,I'd be flipping out too. Call the doc today, I mean it! He/she may want to refer you for antidepressants as those help with the anxiety and hopelessness of the pain issue. First things first. You are allowed to rant and rave about anything you like on here. Seems like we've all been in your present situation a time or two ourselves. I will pray that your doc gives you what you need. I'm not sure which meds you are on but sounds to me u need anti depressant and anti anxiety along with pain meds. Might your life easier. Not being judgemental for sure. Those are the same meds I take.
Will pray for your immediate relief from pain and anxiety.
I feel so very bad for you my friend!! I truly think our Thor is onto something!
It sounds like WD to me as well, like those current patches aren't doing squat for you, hence withdrawal, depression, etc. Are you suffering from any other WD symptoms? Hope not!!
You will be in my thoughts and prayers. Keep that chin up because it WILL get better.
I wish I had some real pearls of wisdom for you, yet I do not... they've already been said here by the lovely people on this site!!
I am sorry that you are feeling so poorly. Can I sit in the chair with you? :)
Maybe we could just reflect on life. (wonder how long that would take?)
Big Texas hug, sweetie!
sosorry to hear that you are going through a tough time. antidepressants have helped me alot. i am in abetter place. so it is worth a shot to speak to your doctor, and at least get informed then do what is best for you. at the end of the day family is who you make it to be and everyone on this website can be there for you. much love and best wishes
Dear Terri, did you happen to mention to your Dr. Just how down and out you have been? I have lived in constant pain for twelve years, and I don't know why, but there is something that gets us psychologically when our pain increases. I know the same thing used to happen to me. IF I woke up with a migraine or in severe pain, it would ruin my whole day. I would feel guilty, and bad and broken, and very, very sad and alone. Yet, in reality, no (decent) human being would criticize you for something that was not your fault, and out of your control. Now my ex was always a jerk about it, but I have learned that my pain isn't something I do NOT choose, and therefore is NOT my fault and that my first priority was to do what ever I could to help myself. I had to actually learn that it was okay for me to spend time on taking care of myself! Maybe antidepressant wouldn't be such a bad idea, at least until you get your head above water. Also, there are some new ones out there that help with pain too. God bless you, Harmony
Sorry to hear you are feeling down lately. I can relate lately. I had a surgeon do a vocal check with an endoscopy down my nose. Within a few hours I had inflammation. This was on Dec 22nd. On Dec 27 I went to see my regular doctor for antibiotics. The surgeon gets back on Jan 9th. I have been in pain for 15 days so far and to top it off I have a migraine today. And it only gets better. I have to undergo surgery for thyroid cancer on Jan 18th.
Terri it's hard to stay upbeat when in pain but try to do something you like. Like watch a movie or have a nice bath, maybe have a friend over for a cup of coffee. But if you feel like you are getting depressed and cannot get out of it, call your doctor and tell him o.k. I have been through depressions and they need to be dealt with.
Hoping you feel better soon!
Smileyhappy : )
Statins to lower chlorestal did that to me. I'm having trouble in my back. if you are female with diabetis or hypothyroid-statin isn't for you. I get muscle cramps so bathe doctor labeled them seizures. The process that keeps fat from becoming chlorestal also prevents nutients from going to your kidneys and limb muscles. I'm going through back spasms-U just don't want to get up-U just don't feel like standing or walking, even when you want to. I basically had to learn to walk and jog, but a little weather change-Oct 2010-I was rock climbing-now I really have a hard time getting around the block. I get so exhausted-and my legs hurt so badly. My legs felt heavy and tired-then seizures and my urine went black.
Terri, Hello! I hope you are feeling better. It wasn't all that long ago that I was in your place. I am doing better now. I have CRPS (Complex Regional Pain Syndrome) formerly and still referred to by most in the professional field as RSD (Reflex Sympathetic Dystrophy). I was at a pain clinic at Johns Hopkins Hospital when they said there was nothing else they could do for me since the rsd had spread everywhere in my body. The doc said I needed the ketamine treatment. I was not sleeping, I was crying all the time because of the pain and depression and lack of sleep. Nasty cycle. I had been hitting my legs with my fist because I was in so much pain and the doc at Hopkins did nothing to adjust meds. I was feeling totally worthless. Because of my condition, I will never be the person I used to be. I found a new primary care doc who made changes to my medication. The medication messed up my system so we had to switch to a different medication.
I am now on cymbalta and doing so much better. My mind is no longer in a fog, I can concentrate better and most of all I am finally laughing and smiling and it feels great! Cymbalta works both as an AD, anti-anxiety, and pain relief medication. I take tramadol for break through pain. I am also using a high dose of ibuprofen for the muscle pain and the tendonitis pain. The fentanyl patch never really did much for my pain.
Just out of curiosity, did the pharmacy switch your fentanyl patch because of the insurance company? Is it possible that the new patch they gave you cost less than the one you were currently using?
Why did your doctor take you off OxyContin if it was working for you? Since starting the fentanyl patch, are you finding there are things you can no longer do because of the pain? Was this a slow process and you didn't realize what was happening or did it hit quickly? Were you weaned off the OxyContin or taken off cold turkey? I'm no expert, but if I'm not correct, you should be weaned off OxyContin. You'll have to research that one.
Gentle hugs coming your way, Rollerskater
You can ask your pharmacy to order the spacific manufacter you like if they cannot get it you can always look around to other pharmacy chains to find the manu you like
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