I have been talking to a friend, who went off their narcotics with Suboxone. They say that the suboxone was the best thing that ever happened, and actually "took the fog out that they didn't know they even had" The grass was greener, sky bluer, etc. I was told that the suboxone was enough to handle the pain, but when something happened, or more was needed, they would go off of the suboxone andstart on a narcotic for about a month until it was no longer needed. Then they started back on the suboxone. I have been told by two doctors that my pain would actually get better if I went off of narcotics. I am very confused. I was doing GREAT on the Oxycontin, better than I had been since I suffered from chronic pain, until they changed the formula. Now I am on Morphine Sulfate ER, apparently at a higher dose than on the Oxy, and even with the three percocets that I take a day for breakthrough, I am miserable. I am in constant pain. When I was on the Oxy, I BARELY needed breakthrough meds. I simply don't know what to do, and would like the advice of all of you, who understand my dilemma. Any advice??
I need advice about going off narcotics?
- 29 Jan 2011 by Anonymous
- 3 Feb 2011
Added 29 Jan 2011:
How do I get this question categorized so that people can see it???
Added 12 Feb 2011:
UPDATE: 2/10/11: I have JUST received my TENS unit!! I'm so excited. It is the first test to see if I will benefit from one of those implants in the spine. I LOVE the TENS unit!! It has four "pads" that I spread out to cover my entire lower back. I haven't had to take any breakthrough meds since I put it on, YEA!! I don't need surgery, just give me that TENS unit. I wonder if they have one that has eight leads so that I can put it on my shoulders and cervical area??
The pain doctor told me that some of her patients have "bad" months, therefore she is not going to change any medicine at this time. She said that I might like Suboxone, but she is not licensed to administer the drug, but she would be happy to refer me to a doctor who does use it. I'm not so sure now, especially hearing about how difficult it is to get off of it. (Isn't that the purpose of the med??), and also the fact that I have no recourse of breakthrough meds if I need them. What if I have to have another surgery? There wouldn't be any pain meds that could help me! So I guess that I will keep things status quo for the time being, because I really love this TENS unit. Tomorrow, I am going to take a walk, and see if I can walk without my back and hips and legs giving out. Oh please let that be so........
Thank you ALL, for your wonderful advice. I may not speak up much, but I read everything on all the forums that affect me, and you guys are terrific!
The Sub thing may just work for you.
Yet, I hear good things about Avanzia, I think 'tis sweet pea that is having success with it after the OP fiasco.
You might want to ask your doc about that. Better than neccessitating withdrawal several times.
Hope you find something that works!!!
Hi msfino. I know lots of people swear by suboxone, but it's meant for short term use to get people off opiates without the wd's. It's not meant for chronic pain control. The other issue is if you have an emergency and need pain control in the hospital, the doc's hands are tied because of the sub. There are other meds for chronic pain. I'm on the ms contin too. 100mg 4X daily plus 40mg oxycodone for breakthrough daily. I know it sounds high, but my pain is that bad. There are other alternatives. Please ask your doc about the options. But the subs really shouldn't be used for this. SL had a good suggestion with the Avinza. I hope you find good relief soon!!
I do know a lot about Chronic pain (from the experience of constant pain) as well as having trouble taking multiple kinds of pain medications, I am not allergic to long acting morphine it just makes me such a different person, moody, irritabile, I can't say it didn't help with the pain but when you walk around in such a state that you hardly know which is worse the pain or having a nasty attitude, Oxycontin was one that made me so shaky, and the last one I was on was Dilaudid, then I got hurt and fractured 4 vertebrae's in my back, then I was started on Opana it seems to deal with the pain probably as much as a lot of them would since I has severe osteoperosis it's going to bother me for a while to come, I am using other medications and I look at it this way it could always be worse, I have never tried the new formula of oxycontin,
my doctor told me about the problems they had and the changes in the drug she informed me that a lot of people who had encountered success with the old formula had problems with the new formulation, I am sorry that you have had such a struggle with it, I just really hope that if you go on the suboxone that you have great success with it, I can tell you from the experience that I have had I have been on this site a short time but there are lots of knowledgable caring and kind individuals, whether you need someone to lend an ear or advice you have come to the right place, if I can be of help to you all you have to do is say the word and please keep us posted as to how you are, I want and wish you the very best caringsonbj (Billy)
Hi. I do not believe that your pain will go away if you get off all the narcotics, plus the longer you've been on these meds that have been controlling your endorphins you will probably end up with terrible depression (sometimes it can be paws) and your pain will probably be worse but after your opiate receptors have time to heal then your pain maybe tolerable. I don't know how long you've been taking the meds but I do feel so bad that you have to take them for your pain. Some doctors are using suboxone for pain these days but I wouldn't recommend it and if you do try it to be very careful not to stay on it too long or you will end up like me who has been on it for 2 years and can't get off of it (it's a nightmare).
If it does help and you feel like things feel better and not like you can't feel your emotions (music is what I can't feel and I really miss) or that you don't enjoy doing things you normally enjoy then I wouldn't suggest staying on it. I know some people who have pain and plan to stay on it forever and feel well on it so that's their choice and I'm glad it helps them but just make sure you know that if you plan to stay on it for more than a few months it will be very hard to come off of. I do not know your whole story so please forgive me if I'm not helpful. I just wanted you to know that suboxone is very addictive. I wrote my story on here a few times but I don't think I posted it in a support group. I don't even know where it is, lol I need to figure out how to post my story in a group because I have never received any advice yet but have been asked my story by one of my new friends so maybe since I wrote her back she will be able to help me figure out what I'm doing wrong. I wish you all the best and hope you get the advise you need. Good Luck and TC :) Larsy1966 (Please let me know how you're doing. I'd love to know). xx
You have already been given alot of good advice so not sure what I can add but you did ask about Avinza and Opana. So I thought I would share with you about them. Avinza is morophine sulfate in an extended release form, so it offers pain control for longer periods of time, but it is still a narcotic that is addictive. Sounds like you are already on this from what I read of your question. Opana is an alternative to the Oxycontin. It is for acute (short acting) pain but it is still an opoid (morophine derivative) and therefore addictive. My sister takes Opana for her fibro pain and has had much luck with it. She also takes Neurontin (gabapentin) for her fibro pain. It is a anticonvulsant (treats seizures) that is also prescribed for some types of nerve pain.
I hope this helps a little bit, good luck and keep in touch,
I have a question and some advise that I hope you go with. First are you seeing a pain management doctor or just a MD. I really hope your seeing a pain management doctor. If your in constant pain they doctor will figure out the right formula for you. I've already went through all that. You may not like what they put you on but oxys aren't made to be on for long periods and it's very addictive. So you may hurt for a while or like me I was told know matter what they do I'm still going to be in pain untill both my hips are replaced. The one thing I'm trying to tell you is talk to your doctor and listen to them. Never over medicate yourself to get rid of the pain. Just please I know it's hard and frustaeting but they know what there doing and they don't like seeing people in pain either.
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