I have been suffering from vulvadynia for the last 5 years. It started out to be a sporadic pain that only lasted for a day or two, but snow balled into 24/7 excruciating pain. I had been misdiagnosed (any where from yeast infections to one doctor suggesting i had vaginal eczema to female hysteria... that one really pissed me off) for many years before the Mayo Clinic gave me a definitive diagnosis last fall. For the last year i have juggled a medication regiment and I am now finally on one that seems to at least dull the pain from a constant 9 or 10 to a 7 or 8 on most days. I have tried nurontin (all that did is make me gain a ton of weight), short term pain killers like vicodin and percoset (those barely dulled my pain for a couple of hours), biofeedback, naturopathy, acupuncture, natural supplements for nerve damage, diet changes and spinal chord stimulation. I have found a little relief with the spinal chord stimulation, so I am getting a permanent one implanted soon.
So I guess I am wondering if there is anybody else out there that has vulvadynia and if so, what have you done to treat it.
I have know idea what that is or what causes that. Will you explain it to me if you want to talk about it. If anything it will get your mind on explaining it and maybe teach me something... I am sorry you are having to suffer. I really wish I had a majic ball that could take away everyone's suffering and pain. Just for a day or for that matter a lifetime... Kim
I am so sorry to hear you have this miserable condition! I have just been dx with it myself. Some of my friends with it have suggested Epsom salts baths, sitting on a doughnut, not wiping but rinsing and patting yourself dry after going wearing white 100% cotton panties and lose fitting pants in the area.. Of course all that gives temp relief is rinsing, and the all cotton panties. For me anyway! But I have RSD/CRPS and my situation is different. I did find Not taking opioids has help me trememdously. I am very interested in finding out more about what we can do for this condition and have a website that gives lots of info about it. I am not sure if it's ok to post my email or the site with that info.. But would really like to help.Let me know. Ok?
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