... usual meds... lyrica, cymbalta, neurontin, older nanti-depressants, methadone, fentanyl patches, etc. I failed the spinal cord stimulator trial. I am now on the long acting Opana 100 mg 2x/day, Trileptal 600mg 2x/day and Zonegren 100mg at bedtime. I also take xanax 0.25mg 4x/day for anxiety. My thyroid was removed this year and I am on Synthyroid 200 M-F and 400 S&S. I take Vit. D 5000 units 2x/day. I also have Crohn’s disease and take medication for that as well. I take a multivitamin and calcium. I am planning to have a trial for the pain pump in March. My pain levels are between 6-8. I am unable to work and barely function at home any more. I have also exhausted naturopathic, chiropathic, dietary and other homeopathic remedies. Does anyone know of any medical therapeutic programs where one would go for a month or so to be evaluated and treated in a comprehensive and intensive manner to get some of my life back? Please help
If you don't mind me asking, why did you fail the SNS trial? It didn't help at all?? My trial after trying to get one set up for the last eight months or more is scheduled for the middle of next month. I am so hoping for it to work. My pain levels in my lower back have gotten so bad that i can't barely walk anymore. In fact, I just got an (ugh) walker to help me go places. l I think that I will die if this doesn't work!
If you are looking for a medical facility Mayo Clinic in Rochester, MN is probably your best bet. My husband was there in 1994, & believe me they turn you inside out. We were there for almost two weeks with all his conditions. You see a different doctor for each condition, & then they all concur. It's quite the experience. I am sure you would get the best of medical treatment there. There is also one in Phoenix, Az now too, & I think there may be one in Florida, but not sure. You can Google the name Mayo Clinic. My best wishes for your better health...
Mayo Clinic in Jacksonville, FL, though I don't think that it is as good as the one in Rochester. I was there for two days and the docs didn't actually talk together, they just emailed back to one doc. It was a waste of time money, and a HUGE disappointment for me. There are also Cleveland Clinics all over (besides Cleveland)... same idea, different cites :-) Mary is right, these places may be your best bet! I understand how frustrated you must be, I was there myself at one point in my life. The doc's decided to put me on prednisone. Yeah, it helped all the pain at that time (my sed rate was over 120), but the damage that it did was inexcusable. I was on 80mg daily for over 9 months in my early 40's. From that dosage came osteoporosis, cateracts, hearing loss, teeth problems, 100+ weight gain, fluid retention, and so many other problems I can't even remember them all.
This is because doctors don't work together anymore and each just reads what the other one thinks and they prescribe, prescribe, prescribe. Once you get over four to five scripts, they start interacting with each other to produce new and interesting side effects! You end up being the experimental animal which needs freed from your life of experiments.
Although I am trying to add some humor to a serious problem, I am in no way underestimating the suffering that you must be feeling. Mary is right. Get yourself to a place that the doctors work together, along with the naturapaths nutritionists, etc. You are not barking up the wrong tree there. The human body is amazing in the way it can heal itself, given the chance. You need to give yourself a fighting chance. Remember, laughter is the best medicine, after that it is your gut feeling about what you should do!!
Good luck. I hope that you can find your answers.
HI nryng! Welcome to Drugs.com!
I realize that you stated you've already unsuccessfully tried naturopathic & homeopathic remedies. I live in Ontario & use an alternative treatment called Kohki. It's available by trained therapists in Toronto & also Beaverton.
While having a Kohki treatment done, my therapist had found some areas of concerns with my body. This happened before my doctors even caught it!
I do feel so much better after a treatment & highly recommend it.
nryng, I added you as a friend so that you can send me a private question if you need to find out more information.
I wish you all best! from Wendy :)
P.S. Kohki is not available presently in the U.S. It is available in Japan & Australia.
nryng: I just thought of another possibility for you. I tried this 17 years ago, and things have changed so much since then, that it just might be your answer. I went to the Pain and Rehabilitation Center run from the University of Miami. There, you were admitted the first day, and all you did was go from one doctor specialty to another. At the end of the day, there was a meeting between you and all the doc's and their findings. IF they could help, they would admit you for at least four weeks inpatient to go through therapies all day long. Back then it was physical, occupational, massage, traction, personal trainer, and most important psychological, where they worked on biofeedback, hypnosis, etc. My main doctor was a psychiatrist, who oversaw and changed all my meds. (Back then they didn't believe in narcotics, ironically sending me home with narcotics). They certainly taught me many skills on how to deal with the pain, as they couldn't help get rid of the pain.
Things like occupational therapy taught me how to hold myself in everyday life, close car doors, go food shopping, etc. Life type skills. They also wrote prescriptions for adaptive devices such as stools on wheels to cook with in the kitchen, handled dust pans for sweeping, just little things to get involved in life more. Although they were not able to help me with the pain back then, I still use all the tools that they taught me to help me through my days... and believe me the pain is MUCH worse now.
It is also covered by insurance. You might want to call and talk to someone there, and see if they can help you. they had people of all ages and abilities there, and like I said, it was 17 years ago. I could only think that they only got better.
Good luck, and I hope that maybe might help you??
I am in the same boat as you, I have severe pain from full body neuropathy. Mine was diagnosed through punch biopsies and various other intense tests. I have suffered with this for four years and since it is a slow progressing disease it never gets easier. Did you ever get the pain pump? I am trying to get it now, they are making me take a series of meds to see which ones are best for me, however, I have such a low tolerance all of them are difficult. Please advise if you ever got the pump and does it work. Thanks, I hope you are feeling ok.
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