I dont want to go on to Anti-epilectics but would like to try another drug which might be a more powerful pain killer , any suggestions. The pain travels into he pelvis and genitilia and affect the bladder and bowels and is relentless.
I have Pudendal Neuralgia and use Citalopram to ease the burning pain, which can be constant?
Added 7 Sep 2009:
I would very much like to hear from others sufffering this condition , the affect it has on my life is devastating when it is at its worse. I am in England and the doctors here look at me like Im crazy as they have very little knowledge on the subject, If anyone knows of any specialist in England who does know about this condition I would love to hear from them.
Here is something I found on the net after much research The National Hospital for Neurology and Nuerosurgery in London is some where that treats your problem. I did find this web page that may be a benifit to you. You are not alone. I never knew about this problem till you brought it to my attention. Putting this on the drugs.com is making us more aware about this horrible under studied illiness. I hope that this will give you some relief. Best wishes
Dr. Andrew Baranowski is a urogynecologist that performs nerve blocks. He generally is in the practice of diagnosing and treating uro-genital pain related issues.
National Hospital for Neurology and Neurosurgery
Queen Square, London WC1N 3BG
Phone: 020 7837 3611
Dr. James Beco is a perineologist who performs pudendal nerve decompression surgery using the perineal approach. As a modification to Prof. Shafik’s perineal procedure, Dr. Beco opens the “clamp” between the sacro-spinal and sacro-tuberous ligaments. It is not a true “clamp” but actually a space closed by a fascia called the “fascia lunata”. After opening this fascia from the coccyx to the ischion there is a large space between the 2 ligaments where the nerve can move freely. He does not believe it is necessary to cut the ligaments to free the nerve. At the end of the surgery he separates the pudendal nerve from the sacro-spinal ligament which can be a difficult procedure. Link to overview of Dr. Beco’s procedure: http://www.perineology.com/files/iuga2006-poster-beco.pdf
Dr. Beco’s contact information:
HC Clinique Sainte-Elisabeth
Rue du Naimeux
9a Avenue Hanlet
Phone: 00 32 / 87 23 01 69
Fax: 00 32 / 87 23 04 69
I know you are a fighter keep up with the new medical reports on Google Scholar. I know you will and can make it. Someday you will be pain fee.
Are you sure it is not chronic pelvic pain syndrome or interstitial cystitis? These are two conditions which often coexist with bowel problems.
Check out the forums here and see if any of these sufferers share your same symptoms.
chronicprostatitis.com (chronic pelvic pain syndrome website)
ic-network.com (interstitial cystitis website)
I just went to a pelvic pain specialist last week. I was seeing a urogynecologist. I have had fibromyalgia for about 30 years,IBS,Migraines,over acitive bladder,IC and now I am diagnosed with pudendal neuralgia. I was shocked with another diagnosis. He felt I should try Cymbalta right away and start sitting on a pelvic cushion. I am already taking Elavil for sleep among many other meds and had avoided Cymbalta for years. He really feels this could help the Neuralgia. If I have side effects I can stop the medication. I was shocked on how I can not ride a bike anymore and was told to always sit on the cushion and when I can lie down do so instead of sitting. My pain always gets worse when sitting at work. The feeling of something always inside,and the pain just becomes so unbareable it takes Hydrocodone or Percoset to take the edge off. I have tried physical therapy for the IC and over active bladder.
I refuse to give up. I walk a little everyday and some days I feel like I can not go another day. I went to classes on alternative methods for relaxation and pain control. I will say sleep is very important. Pain will always be worse without sleep so if this is a problem work on sleep first. I am nervous about another medication but hope the Cymbalta will help. I am hoping if it does to cut back the Amitryphtlyine at night. I tried Topamax and anti-seizure med but had sever migraines and can not take the medication. But if you can stand trying different medications under the doctors care to see if anything will help it is worth any risk to cut down this pain. If anyone else has Pudendal neuralgia I love to hear from you. I
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- Side Effects of Citalopram (detailed)
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