I have fibromyalgia and Chronic Myofascial Pain Syndrome (Disease). Everyone is different, but honestly I could live with the fibromyalgia pain, but not the Myofascial Pain. It may be that you have both and have just not been properly diagnosed. There are several very good books available at your library and/or information on the net that you could check out, read, and see if your symptoms match. It is often overlooked, yet often coincides with fibromyalgia. If you have both, the pain is overwhelmingly constant, yet often changing from a strong dull ache, to sharp stabbing pains, charlie horse type contractions and heavy burning and pulling type pain. It often involves nerve type pain, that simple pain medications do not touch. I was taking a lot of vicadin and was still bed ridden with a heating pad. I finally got my Dr.
to prescribe Morphine Sulfate ER and it does the trick all day, without me feeling like I am on anything. I don't feel drowsy or medicated, but this is my second bout with the disease so I am also opiate tolerant. No one should be in that much pain without relief, it is inhumane. Try to get in with a pain management physician that has knowledge of both syndromes if you feel that is the case. Trust me, I have wasted a lot of time with physicians who lack the knowledge or understanding of how painful these two problems can be when they coincide together. Good luck to you on being pain free. You deserve it!! Hope this helps! KEM
Check out the book: Fibromyalgia & Chronic Myofascial Pain by Starlanyl & Copeland
Cut and Paste the links below, but there are many more out there:
Good luck with your search! I have learned the hard way that there are a few questions you should ask before you even bother to schedule and appointment. That is if you do feel that you have both conditions. 1) Do they take your insurance for "new" patients? Wasted over 5 weeks of my time getting the "wrong" answer to that question. 2) Are they familiar with Chronic Myofascial Pain? (Once again if you think the diagnosis fits) 3) Do they treat with trigger point injections? Make sure that they do in the area that you think you might need them!!! I had a pain management physician that I loved, but would only do injections in the back. I have pain in the lower back and inner pelvic region. The pelvic region causing the most pain. Yes, I had a hystorectomy for no darn reason at all! Anyway, I had to switch and find someone that would shoot in the front and upper inner leg.
OUCH!! but so worth it! 4) These are just bonus features: Ask if they have physical therapy and/or detox services if you are going to be put on pain meds. Remember that pain meds have a nasty reputation, but do serve a necessary need. If you take the meds as prescribed, and only when you are in pain, then you should not have any side effects. It seems to go right to the pain and won't make you feel "high". That is the way I have found it anyway. I have detoxed off of fetnyl patch and all other kinds of pain meds without any assistance and didn't seem to have much of a problem. Just felt like I had the flu for about 6-10 days. I wouldn't tell anyone that you are on them either. People that do not understand make quick judgements. It is just not worth explaining or trying to explain to ignorant people that have no idea how much pain you are in and are quick to judge rather than listen. Keep posting and/or talking to people that do understand. It is helpful!!
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