... now includes neck, hip, lower back, pretty much just all over miserable. I have posted ?'s on back pain & other pages as well. Some of the dr.s I have seen have mentioned fibromyalgia. I was taking lyrica and it really helped bring the pain level down a few #'s but I could not tolerate the side effects. I think I had every single one!! I can have a few good days when I can get a few things done but then it seems like I am wiped out for days... don't feel like getting off the couch, everything hurts, very tired, depressed and moody, I get very annoyed with everyone. especially those who care about me the most. I am currently taking 60mg 2xday kadian, and 2 soma 350mg a day. I think it is helping the pain, but not enough and the constipation is terrible. I am starting to think maybe it really is fibromyalgia since the lyrica helped, ( i also tried nurotin but once again the side effects were terrible). Does this sound like fibromyalgia, what else can I try? I am soooo sick of being in pain and physically exhausted most of the time. I go back to the dr soon and would like as much advice as possible to suggest to the dr so I can get my life back. I am tired of feeling like I am just taking up space and feeling totally useless. I am also unable to work since I feel so awful. Please any advice is appreciated greatly
The constipation alone can make you irritable, moody. I would work on that first. Drink lots of water and do a lot of walking. Eat high fiber, lots of veggies, activia yogurt. Once you get your bowels moving again, then you can better handle your other issues. I would talk with your doctor about decreasing the soma and increasing the kadian. You may be tolerant, depending on how long you've been taking it. Unless you get the pain under control, the depression and moodiness will only get worse. I know for a fact that chronic pain can lead to depression. I know exactly how you feel. I suggest you print out this page and bring it with you to your appointment. It will show your doc what you've been going through. As far as Lyrica, I have heard both good and bad stories about it. Obviously the side effects were too much for you to handle.
Have a talk with your doctor about getting your pain under control. I think that's your best bet for now.
Wish you well and good luck on finding a solution.
Hi yayablondie it does sound like fibromyalgia and/or other diseases it took me 4 years to get diagnosed. It seems because of billing codes that doctors only want to talk about one body part at a time. Check out some sites like Mayo Clinic, Cleveland Clinic, John Hopkins. I went to 3 chiropractors, 4 ortho surgeons, and my family doctor. I did physical therapy hydro therapy and took shots in my back. I had xrays, MRI's and other tests. Followed all the rules to get disability and finally the last ortho guy figured it out. I have several types of arthritis and other muscle type diseases as well as 5 herniated discs. I would bring info found on internet to my family doctor and we used that info to start to find out which drugs did work for me without side effects. It took a couple of years due to medicare not paying for certain drugs but we finally found out what I needed to function somewhat normally. I still get flare ups but I know what brings them on now.
I think that the more informed the patient the better your relationship with your doctor and he knows you are checking things out. Good luck to you! Don't give up YOU are the one who needs to be an informed patient.
Your pain and medications sound exactly like mine. As the others mentioned you maybe missing an important diagnosis that goes along with the fibromyalgia and is essential to get better. I found this book at the library and it really helped me help myself and talk to my physicians. The title is Fibromyalgia & Chronic Myofascial Pain A Survival Manual. The second ediction and/or possibly the third might be out, haven't checked. It is written by Devin Starlanyl and Mary Ellen Copeland. One or both of the authors suffered from the same symptoms and problems so it is written by someone with the same experiences as ours. It also seemed to give me some control over what seems to be such an uncontrollable problem. A lot of answers to your questions will be found in that book. If your library does not have it you can purchase one used from Amazon real cheap. It will be worth the money. Trust me, I cannot work either and have two teenage daughters. I know exactly what you are going through!!!
The constipation might be a result of hypothyroidism. I had been on thyroid for many years and when I was diagnosed with fibro in 2003 I had to double the dose. Also I had a sleep study done and I did not go into REM stage sleep and later was diagnosed with a growth hormone deficiency. After starting growth hormone injections a lot of the pain went away. I also have to use a CPAP to help me breath at night because the sleep study also showed that I quit breathing several times every hour. That alone will make you feel like you were hit by ten cement trucks during the day. I woke up with migraines everyday. Now with the increased thyroid, Cymbalta and Norditropin injections and Ambien CR at least I can get some sleep. The fatigue is still persistent and I also had to retire before I was ready.
I hope some of this info will help you.
yayablondie; I was reading over everything you listed and it sounds alot like Fibromyalgia. I have had Fibro & Chronic Fatigue for 30 years and I also have several other Chronic conditions. I don't remember if you mentioned if you are talking with a Primary care Dr. or a pain Dr. The first thing is you need to go to a Rheumatologist and when looking for one call around and make sure they handle Fibro as some do not. You will need blood work done to rule out other conditions and then they should be able to gather information from you and do a physical exam for the Fibro.
I went un-diagnosed for about 7 years and had to go to several Dr.s to find out about the Fibro & Chronic Fatigue. It is VERY frustrating but don't give up there is help out there for you. I also want to suggest that you go on the National Fibromyalgia support group website and read over the signs & symptoms of Fibro and it also list the various conditions that cross over with Fibro. I know about the depression also as i take medication (Cymbalta) for the depression. Depression is VERY common with people that have Chronic Pain. With this kind of pain & depression it will make you irritiable so don't beat yourself up on that. I have not heard of Soma actually helping anyone with the pain. The Dr. needs to find out your diagnosis and get you on the correct medication to help you. For the Fibro I currently take Opana ER & Cymbalta and unfortutanetly any pain medication you take will make you constipated. You can do a number of things to help with that. Drink ALOT of water and eat alot of Fiber. You can also take fiber supplements and I have found that using a Probiotic ( you can find over the counter) that helps your digestive system work properly. I also remember you saying that when you do alot one day that it lays you up for several days.. And that is a Big sign of Fibro as you will have some "Ok" days and try & get caught up on things and over due it. Then you will start hurting & fatigued for several days and sometimes weeks to get better. I hope that some of this info helps you out and if I can help you in anyway please contact me by e-mail. Hang in there and I hope you find a good dr. to help you out. And be sure to go into the National Fibromyalgia support website it also has a list of Dr./s that specialize in Fibro depending on the state you live in. I hope you get some relief soon. And make sure to take some down time for yourself on the really bad days as there will be several.
Hi yaya! I hope that your situation has improved!
Would you please grace us with an update? Do you have a firm diagnosis now? Which drugs have you tried? What meds are you now using?
I'm in a similar situation & am very interested in knowing.
Thank you ever so much for all your help, yaya!
All the best to you! from Wendy :)
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