... almost unbearable. Is Cymbalta possibly an answer for me?
Hi, what other meds have you tried and what doses and side effects?What is your dose of lyrica? What are your side effects? How long have you been on it? When did the neuropathy start? Did you have any diabetic type burning pain prior to the chemo induced neurop?
Suggested opiates for nerve pain-methadone because it has NMDA antagonist properties. Other long acting opiates are fentanyl patch,ms-contin which is long acting morphine and Oxycontin which is long acting oxycodone. Have you ever tried neurontin which really lyrica is suppose to be the new neurontin but in lower doses.
I am an above knee amputee after enduring 68 operations,23 broken bones and 3 days after my AKA I was in way worse agony then when I was in the burn unit. The phantom pain far exceeded any pain I had ever dealt with and boy was I in for a long road of trial and error. My doctors didn't know as much as they do now about phantom pain and trying to help lessen it and after amp be very aggressive with opioids.
What studies have come to realize is OPIODS DO HELP NEUROPATHIC PAIN-YES YES YES OPIODS HELP NEUROPATHIC PAIN. I repeat myself because so many doctors are so livin in the stone ages. When will they get it. When one truly suffers from chronic pain which leads to intractable pain-opiods need to be used and the rate of addiction is extremely low. Yes we will go thru withdrawal when going off but I went thru withdrawal from hell when coming off cymbalta. Yes the cymbalta that was started in NOV 2004 along with my methadone I have been on since 1996 helped tremendously and I didn't even follow thru with getting a spinal cord stimulator like I had intended but after 3 years the cymbalta stopped working and even though I had been sweaty coming off the cym- I went one full year with the strangest clammy yucky feeling where I couldn't hardly move. I would take a shower and was cold but hot and needed a warm blanket from the dryer to wrap around myself to absorb the clamminess. My back would be soaked on doing the slightest thing. I was almost more depressed about that then the crushing,burning,gnawing knife like phantom pain where it feels like a vice is enclosing tighter and tighter. Anyway, cymbalta can help nerve pain. All medications work differently for diff people. I have ben wheelchair bound for almost 14 years and would like to lose about 12lbs. I only eat 500-650 cal a day.
What scares me about LYRICA is the hundreds of people that have gained excessive amounts of weight. 30lbs in 3 weeks-70lbs in 6 months. I have been on lyrica 9 weeks 225 mg==75mg 3 tims a day. I ha vent gained any weight-maybe a pound or two. I fluctuate because my metabolism is so slow. I don't understand how even males that are able body that can consume 2500 calories a day without gaining weight so in order to gain all this weight from lyrica, it must be causing excessive appetite of extreme fluid retention or both. I have blurry vision too. I hope my new pain doc doesn't want to take my methadone away and I have a feeling she is all for that suboxone but it has a ceiling effect equal to 30mg of methadone and I wouldn't be able to take anything for breakthrough. Why after 14 years and I have finally found a good combo of meds which it's not like I am taking 12 meds. I am sorry to get off track and talk about me and lyrica. Has it even taken the edge off for you? I need to know more. Can you answer the questions at the top? One thing about the lyrica is I repeat myself and forget very easily. I pray I don't get the weight gain. I have shown so much discipline and self control for yeas. Prior to amputation when I had a bad leg I would cycle 50-100 miles a day when weather permitted. Snowmobile tons of miles and exercise indoors. I wore my leg out but was talked into the amputation. Never ever would I have had it done if I knew the road that lied ahead full of excruciating life draining pain that destroys the soul. I am a fighter but some of it depends on the scripts signed by the docs so they have some control because we can't put ourselves on a regime we feel needed.Everyone in chronic pain should have their pain treated adequately and appropriately. No one deserves to be in excruciating pain in today's day and age
I can not respond about the cymbalta but please be very careful with Lyrica. You can read my post on this drug and its possible(horrific) side effects. Some people swear by it and to others, like me, it was a nightmare. I,like you, am in unbearable pain (from neuropathy) but the doctors do not care. They will not prescribe anything for my relentless pain. Previously they gave me darvocet which at least allowed me to function in everyday life. Now(for about 2 years) I just grimace in pain and hope and pray that each day will get better than the last.
I have heard that doctors do not want to prescribe the pain medication that works for each individual because if there is a record of someone taking it for a prolonged period of time they could be investigated and actually have their license to practice medicine REVOKED!!! In this day and age I find it appauling that this chronic, UNBEARABLE PAIN should have to be endured by anyone. Most days I just wonder how much longer and how much more of this pain I can endure without it literally ruining my health and eventually my life. No one understands unless they have ever suffered, like us, from excruciating pain 24/7. I am just so tired of feeling like this day in and day out. I have tried ALL the alternatives- accupunture, physical therapy, vitamins, antidepressants, EVERY over the counter pain reliever and nothing even touches it. I know for certain that I would much rather take a SMALL chance of becoming dependant on a medication that actually helps me be able to live my life as a productive citizen and a wonderful loving wife, mother, grandma, neighbor and friend, than to SUFFER like this day in and day out!!! I want my grandkids to remember their grandma(me) with at least an occasional smile on her face and happiness in her voice rather than a constant frown, a grouchy, negative attitude and tears streaming down my cheeks, all caused from this relentless pain that I am forced to endure, because the only alternative now, is death and that is unacceptable. I am too young(not to the big 50 yet), I have too much to offer and I am not done living yet!!! This is all I ask- Is that really too much???
I have neuropathy and on gabapentin. I still have unbearable pain. I was on 15 mg of mscontin for a month and got rid of some of the pain, then the next month they put me on 30 mg and I overdosed, the hospital tried to say I did it on purpose until I told then they upped the dosage so now I'm on the gababentin and still have horrific pain when I go to bed. I don't know what to do. They took me off the lyrica that I have taken for years.Everyone thinks I am diabetic. I get checked frequently. I can't take the pain any more. The neuropathy is in my feet and is going into my legs and hands. Is there anything that might help. Will some kind of physical therapy help. I also have arthritis in my hands and legs and my back.
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