... work physical. biopsy of lymph nodes comfirmed sarc. my doctor has been monitoring for this long with ct with dye every 6 months. my last ct showed a couple more spots than normal and now my doctor wants to start prednisone treatment for 9 months. i begged him to give me 3 more months -then do another scan. i am not symptomatic and run everyday. i have no breathing problems. i just want to know if this treatment being started now is appropriate, and if so, what can i expect. i am scared --- less of all these war stories of prednisone. please help
Get a second opinion - especially given you have no symptoms.
Sarcoidosis symptoms often get better on their own gradually without treatment.
Severely affected patients may need treatment with corticosteroids (prednisone or methylprednisolone). Therapy may continue for 1 or 2 years. Some of the most severely affected patients may require life-long therapy.
Drugs that suppress the immune system (immunosuppressive medicines), such as methotrexate, azathioprine, and cyclophosphamide, are sometimes used in addition to corticosteroids.
Although these treatments may temporarily improve the symptoms of the disease, long-term treatment has not been proven to prevent sarcoidosis from slowly getting worse.
For more information see: https://www.drugs.com/enc/sarcoidosis.html
Hopefully you are dealing with a Lung Specialist and not any doctor and if your not having no Breathing problems i would check out another doctor Prednisones are good and bad I been taking prednisones for over 3 years but i had Sarcoid for over 8 years now and its been affecting my bones and it will affect any one bones due to Chronic use of the steroid now my Doctor put me on Methotrexate and Fosomax now the Methotrexate supposed to be better than the prednisone and the Fosomax suppose to make my bones stronger but you know everybody different so good luck
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