I have had Mixed Connective Tissue disease since I was 12 yrs old. I wasnt allowed to participate in Physical Education when I was younger, due to the serverness of my disease. Mixed Connective Tissue disease consists of: Rheumatoid Arthritis, Lupus & Polymyositis. When i was diagnosed, I was a number of different medications. NONE of which helped... if anything, it locked me in the worse state of my life. Since then, I kicked ALL the meds... (nothing was going to cure me, so I was tired of taking poison simply to make it worse). Anyways.. I had a child a year ago, and now that im responsible for taking care of someone else, I need the right medicines. My doctor had given me Hydrocodone 10MG, and I was on that for about 5 months, then she drug testest me (I smoke marijuana a few times a month, its more of a social thing.. that I can easily do without. Especially now that I have a daughter). Well, I tested negative and she quit giving me the medication, so I switched Drs. My current Doctor perscribed me Hydrocodone 5MG, and sent me to a Rhumatologist (sp?).. who is against Narcotics! He wants to give me a medicine that will supposedly help in a few months.. I just dont believe it. My pain cause me to just lay my whole childhood down.. and people mistake me for a lazy person, when really Im just so fatigued all the time, and tired.. and in pain to do anything. I have hid my illness from all my friends.. I dont want them to know how ill I am. So, Im tired of getting the run around. Im tired of the medicines NOT being enough.. I withdraw a few times a month.. until I can find someone who sales their medication. (Which I know about 5 people who get Hydrocodone 10MG 180 Pills a month! And they dont take a single one... Its not fair). I dont get HIGH when I take Hyrdrocodone.. it just gives me the strength to MOVE. When I am medicated I want to play with my daughter, and take care of her.. but its almost impossible in the state im at right now. Not only am i suffering from this condition, but I am withdrawing from the lac of medications. What should I do? :(
This is the problem with getting addicted to any drug. After a while you need it just to feel normal. It wouldn't be so bad if you could stay at the same dose, but you always end up needing more and more. And then it's true, you don't get high from it anymore. They say if you detox yourself, and stay without it long enough, eventually you feel ok again. But you have been taking these drugs since you were 12, so you don't even know what feeling ok as an adult means. I just wanted you to know I understand your dilemma. I've been going through a similar problem most of my life. My problem is I have this organic brain illness that causes me to not feel ok, all the time. All my life I was getting hooked and unhooked on various meds. I thought I found the answer in 2005 with an old drug called Buprenorphine. It was re marketed as Subutex and for 5 years I stayed at 1 dose and I was content and felt normal for the first time in my life. But the company that made this drug stopped making it and the generic is nothing like the real thing. So here I am pushing 60 and I'm back to where you are. Only maybe worse because while Buprenorphine doesn't cause a tolerance to itself, it has given me a sky high resistance to opiates like Hydrocodone. I now need about 200 mg a day of Hydro just to feel ok. I don't know what to do neither. If the makers of Subutex would keep making it I would have been OK. But they didn't. I don't have an answer for you, but I do have a lot of sympathy and compassion.
Hi innocentGirl,& welcome to the site. I suggest you see a pain management doctor. You do need to have medication for al that is wrong with you, & I don't believe you will become addicted. I totally understand where you are coing from. I have had several diseases as you & for years refused to take pain meds too, but I am so glad I finally gave in & did as my doctor wanted & am getting some relief by taking pain pills. Not everyone is an addict, & you should not feel that way ever. You have a lot on your plate to handle, & having a young child too is a lot for you I know. The Lupus alone makes you not want to do a darn thing & the pain is sometimes unbearable. Do yourself a favor & get an appintment with a Pain Management doctor so they can get you on the right track.
Be sure you take your medical records showing the diseases you have & what has been done to help you if anything. Let them do the diagnosing as far as what they think will help you. Don't go in begging for hydrocodone or they will automatically think you a drug seeker. I feel for you hon, but help is out there for you. Hang in there... Mary
I do not believe that you should allow your Rheumatologist tell you what you need to do with your pain. If you are not happy with him/her then move on to another person. You may also try to let the Rhem know why are you in this medicine and the positive results you are getting with it. I do agree also that you should see a Pain Management Doctor. Hope this helps.
- Hydrocodone Information for Consumers
- Hydrocodone Information for Healthcare Professionals (includes dosage details)
- Side Effects of Hydrocodone (detailed)
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Escitalopram - Hello, does escitalpram (Cipralex) or clobazam (Urbanol) weaken connective tissue? I?
Posted 20 Feb 2010 • 1 answer
Posted 6 Jul 2011 • 2 answers
Posted 11 Nov 2011 • 2 answers
Mixed Connective Tissue Disease - could a blood tranfusion after a miscariage cause me to have mctd?
Posted 6 May 2013 • 1 answer
Connective Tissue Disorders - I am gaining weight like crazy! And I am NOT on any steroids! Is there
Posted 30 Oct 2015 • 5 answers