... Clinic in MN to try to find affected parathyroid gland this month but no success. One symptom I have that I have read on some limited websites that can be a symptom of unresolved hyperparathyroidism is neuropathy. My feet are numb and getting worse. I have spoken to a couple of endocrinologists but they seem to not be aware of this as a symptom. It really is a problem in my everyday life (I just turned 60, no history of serious health issues.) Anyone else heard of or experienced this symptom?
I too went to the Mayo in April, and brought with me test results showing high ionized calcium levels and a positive sestamibi scan. Much to my shock I was told that the scan didn't show anything. The scan was done at one of the best hospitals in this county, and the scan report said there was an adenoma. Because I don't have a high PTH level, I was told I do not have hyperparathyroidism. I have since read that there is about 20% of hyperparathyroid patients will not have high PTH.
What upsets me is I spent all that money for them to tell me this excuse. This is the second time I have been to the Mayo (the first time was for something else) and received no help either visit. I am going to try someplace else because my life is horrible. The longer this goes on, the sicker I have become.
I have thought about going to Dr. Norman, in Florida, but what concerns me is that there is really no aftercare there. Also he charges an outrageous fee, which I find cruel considering people are suffering. I have also read through some of his patients' posts, and although it is rare, there are people that have been left with problems and no other doctors will address them either.
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