I totally understand why you have asked this question. Unfortunately it is one that no one can answer. As you know your diagnosis is extremely rare. Because of this there are no evidence-based guidelines on your condition within the medical field. Thus there is no evidence-based information on alternative therapies. This means that Kaismama is correct. Your clinician can only treat you within what is known to have a favourable result, and that is Prednisolone based treatment.
I wish you well and take care
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