My husband gets his eyes tested every six months, this past visit the eye doctor was concerned that he has been on the medication for 10 years and did suggest it may be time to stop. My husband's regular physician says there is nothing to worry about. Who is right? We are concerned.
It's important to keep the regular eye appointments. I've been on plaquenil for 15 years. My eye doctor told me in the beginning it's a safe drug, don't worry. After I had surgery (unrelated) 3 years ago, I wasn't able to keep my regular eye appts. Last month he told me I had significant retina damage. I stopped taking plaquenil and it's no fun. I have some decisions to make when I next see the rheumatologist. I can say that it did help me while I was taking it, sorry I wasn't able to keep eye appts for 18 months. Surprised the damage occurred in such a short time. Keep those appointments - that's very important. Luck to you.
Yes – I believe 10 years is the max you should take plaquenil. I took this drug for 11 years, At the max dose for my weight. and went every six months to have my eyes checked by the ophthalmologist. After 11 years – the ophthalmologist said for me to stop taking it. I did not notice any change in my vision until a year later. It's now been four years and I have a beige doughnut of blurred vision.
When I stopped taking the medicine – I did not start another drug. I expected my illness, Sjogren's syndrome with neurological problems, to get worse, but I experienced no change.
I had found out eight years before that I was gluten sensitive and had stopped eating gluten. Apparently this was causing my illness all along.
Gluten is documented to cause Sjogren's syndrome type symptoms. Even mimicking MS.
Don't risk your vision – it is not worth it. My strong advice is to eliminate gluten and any other food allergens from your diet. MD doctors do not believe in gluten sensitive illnesses.
PS: after stopping the plaquenil with no problems, I was able to slowly cut back on my baclofen. I now have not taken baclofen in over two years.
I have neurological damage caused by the gluten sensitivity – and I have to take gabapentin for nerve pain. That worries me!
- Plaquenil Information for Consumers
- Plaquenil Information for Healthcare Professionals (includes dosage details)
- Side Effects of Plaquenil (detailed)
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