I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with anyone in this same circumstance. Thank you!
I must admit I have no experience in this area. I checked and we have no reviews from other people who've used this drug, either. I can give you the link below for the side effects that people have experienced from decitabine:
It was hard to find reviews of this drug at all. I finally found reviews on this site:
http colon //treato dot com/Dacogen/?a=s
I was diagnosed with MDS in June 2015 and have gone through 2 cycles of Decitabine. I was an extremely healthy 52 year old woman with no health problems. I have extremely low white blood cells so have recently caught pneumonia so I am on hold now for my next cycle. Some side effects I have experienced are fatigue mouth sores currently not working
- Decitabine Information for Consumers
- Decitabine Information for Healthcare Professionals (includes dosage details)
- Side Effects of Decitabine (detailed)
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