I have suffered for over 7 years with Burning Mouth Syndrome. I was on klonopin for most of that time and recently had to go off of it... because it wasn't effective any longer. My neurologist started me on nortriptyline 18 days ago and I still have extreme, debilitating pain in my mouth... mostly my tongue. Is there a general time when this drug should make a difference in my pain?
Try eating lots of yogurt and a mouthrinse called Biotene, which has NO alcohol. It was developed to help chemo patients who were getting chancher sores and other oral problems. It is available at all drug stores and mass retail stores. It really worked for me. The yogurt will help also. Somehow the GI tract gets messed up and the yogurt resets it.
I've used 70 mg. per day of nortriptylene along with 600 mg. alpha lopoic acid. It will make your urine smell like skunk, but has helped with the mouth burn this past 3 weeks, after using it for 1year and 11 months. i stayed on a very strict diet of not msg, yeast or carbs. The only thing I drink is ice water and rice milk. Frozen peas, carrots, beans and corn with chicken or beef worked out well. Liquid vitamin D 10,000 mg a day helped also. We don't get much sun in Michigan this time of year.
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