At first my doctor thought I had benign positional vertigo... but I don't really feel "dizzy", more light-headed. And my eyes don't twitch. And the repositioning exercises have not helped. Then I was being treated for migraines, which seemed to make sense... headache, sensitivity to light, sound, smell... only migraine meds don't help! The only thing that helps, is time. It takes hours, or even days, of lying still, in bed, in the dark, away from noise, heat, and smells, for the headache to finally pass. Cold packs on the front and back of my head do help a little. I'm 42 yrs old and never had migraines or headaches of this kind. They started after I fell in the middle of the night, in late May 2013, and hit my head on the door jam. I didn't black out, just felt light headed, and seemed to loose my balance and fell. I had a lump, and bruise on my forehead. I did not go to the doctor at that time. My first "episode" happened on an out of state trip, and I thought perhaps it was motion sickness. I took Dramamine, which knocked me out for the rest of the trip, and I left it at that. It happened again on my next long car trip. And nothing helped. I was just miserable. Headache, nausea. Then it began happening on short trips to town, whether I was a passenger or driving. Now I get headaches simply from walking into the next room. It seems to be both the position and movement that triggers things. Just going from lying down to sitting up causes a slight headache. Then getting up and walking makes the headache worse. Just getting up, I seem to have an issue with balance. I think the nausea happens when the headache gets bad. Zofran sometimes helps the nausea. The headache starts at the top/front of my head, behind my forehead. As it worsens I feel it at the base of my skull as well. I feel a "pressure" behind my eyes, but not like eye strain, like you'd get from reading a lot. When I feel that eye "pressure" is about when the nausea kicks in. When the headache is REALLY bad, my temples throb. I also feel a strange pressure very deep in my ear. Yes I've been checked for ear infections an am clear. But it's not like when you feel your ears pop, it's deeper than that. I know... it all sounds very weird, and I'm starting to feel like I'm losing my MIND!!! I had a head CT done a week ago and was told it was clear. I also deal with fibromyalgia, and use 100mcg fentanyl patches and 10-325 Norco for break through pain. These "episodes" began before my last increase in fentanyl from 75mcg to the current 100mcg. Though I don't really think it's the pain meds causing the episodes, I would also like to get off of them as well. I'd like to switch to holistic medicine, but I live in a rural area, and it's just not accessible here. :( I'd be very eager to hear from anyone on the topic of holistic treatment, fibromyalgia, and if you have any clue about these "episodes" please share. Thank you!
Have you seen a neurologist for this and had a CT scan or MRI? Being as these started with a bump on the head I would think of looking to see what damage that bump did. If nothing shows up there, perhaps try a practitioner trained in cranial sacral work. Chiropractors sometimes are, some massage therapists are - you will usually find practitioners through your area's alternative healthcare providers. Cranial sacral work works with your body's natural rhythm's, and stretches and makes tiny movements along your spinal cord and, especially important to you: the practitioner makes tiny movements to the many bones that are in the skull including the TMJ bones and muscles. I've found it extremely helpful with treating my migraines, which were horrible at one time. I now get one that is really bad every six months or so - incredibly better.
But first - make sure there was no damage to your skull or brain from that bump. That is crucial. Now a neurologist most likely will know nothing about cranial sacral work. That is due to the huge divide between medical practitioners and alternative care practitioners. It is up to you to research both - and please do give both a try. There are advantages and benefits to both disciplines. I hope you find relief soon. EJ23
Hi Rhonda-It doesn't sound wierd to me at all! It sounds exactly what I've been experiencing for years now! In fact, ur the 1st person I've heard to explain perfectly what I've been going thru! Have u had any luck w/a diagnosis or treatment? I noticed this was from 2013 & I'm just discovering this post now in 2017. I've researched this issue many times & don't know how I never came across this. I was diagnosed w/Vertigo & nostagmas due to an inner ear problem after an ENG was performed in 2011 but it went away after a couple of years but still suffer from migraines often. I am going thru an episode now where I got a migraine a couple of days ago, was light & sound sensitive, had the pain behind my eye & in my ear. (Mine typically occurs on my left side but can happen on the right side as well.) Took a Maxalt pill & after sleeping thru the night, it seemed to be better.
But within a few hours & after having drove a short distance, it was back. Took another Maxalt, laid down & took a nap, & it seemed to have gone away. But as soon as I got in the car to go get groceries, it was back. So took another Maxalt b4 bed, woke up the next day & still had it. Anytime I got up & moved, it made it worst. Sat back down, it was better. Had to drive somewhere, got worse... any movement made that side of my head fill w/pain! (I also take 100mg of Topamax everyday as a preventative.) When I had the Vertigo it was severely worse, like u. Couldn't ride in a car or move at all on a daily basis. Now it seems these episodes happen around 5 days long each month. I can't find any explanation. I'm going to ask my NP for another referral to my neurologist & have him check me out again. I did have an MRI of my head in 2011 but it showed nothing wrong. I've hit my head numerous times in my life but nothing really coinciding with the onset of this. My grandfather had vertigo so figured that was genetic but I do have a strong feeling there is an inner ear/eye coorelation going on here. I do still have episodes of dizziness & loss of balance at other times. Let me know if you have found out anything PLEASE!!! I will post any further findings or updates as well. This has become a crippling issue & interference in holding a job. Wishing u the best with Much Love & Many Hugs!
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