... I've been dealing with a lot of strange symptoms and passed from doctor to doctor for several years. I just need others who can relate, help me understand and cope. I do have a cardiologist appt. Monday... since it was the neurologist who dxed me, finally is controlling my constant high heart rate and all over the place blood pressure (supra ventricular tachycardia), I would love to know how any of you deal with this? My docs are at two different hospitals... cardio is good, but always in a rush? Thanks for any help
I can relate to what you are going through. I feel bad all of the time and recently discovered that I have thyroid nodules, and spinal issues. Sometimes we can have BP problems due to pain. Have you had your Thyroid checked? You need a good primary care doctor first of all, then they will decide as to what specialist you need to see after they do the necessary blood tests, x-rays, and other tests needed. Another tip, doctors are rushed at times so I write down all the problems I am having before the appointment so as to not forget important details to share with my doctor. You will be amazed at how much you can get covered in a short amount of time. Your doctor will appreciate it as well. I hope you are feeling a bit better soon,
I was finally dxed with AN about 3 years ago. For almost twenty years before that, my symptoms seemed most like those with MS. For many years my bp ran on the low slide and then the very low 60/40. Recently, it has gone super high 190/100 and above - was admitted in a hypertensive crisis a few months ago. it still fluctuates radically everyday. Treatment is a challange. Depending on the type of AN you have it can affect every autonomic system in your body. How were you dxed? It is a very difficult disease to manage, emotionally, physically and spiritually. I empathize with you. If you have any other questions or it would help you to discuss this with someone who has the same dx, I am more than willing to. I just can never predict what I'll be able to do any given day. From my understanding, it is a rather new dx, so there has not been a lot of research about it. as far as I know, there is no cure, but the treatments can be controlled to a degree. Sending you support and care from a person who truly understands!!!
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