I am 23. 5'1" 100ibs in decent shape. Within the last 6 months I've been experiencing a high resting heart rate, which makes me fatigued, gives me some muscle pain and anxiety. I have had lymes disease, and mono. Other than that my health is good. I have been diagnosed with anxiety, but i feel that it is my high heart rate and always being physical uncomfortable that causes the anxiety. I have had EKGs done and an Echo which have shown a healthy heart. I feel faint often, but have not fainted. Any ideas or suggestions?
I too am in early stages of diagnosis. I am alao experiencing tachycardia (fast heart rate). I'm quickly realizing nothing about Lyme disease makes ssence! My pulse is 100 (whaaat??? ) but bp is 90/70, normal for me. A nurse said that is normal if your in pain. Which I am. Excruciating! I waited too long. I had a headache (a bad one) but I put it off and chalked it up to the heat.. After a month plus of this headache my husband forced me to the ER. Its been a nightmare since. I'm so ready to get back to normal. You don't realize how much you miss life until you "can't life" anymore.
I,too, have the same problem. I couldn't stand up for more than 5 min before my vision would darken, profuse sweating. Extremities bone cold and my heart rate was up to 160. Resting rate never went under 100.
It's one of those things that was easily explained away as anxiety by my primary.
I lost years of my life trying not to faint. Once I had the symptoms I had 2 min to sit down or I'd faint. I sustained 3 fractures ! Yet I still could not be diagnosed.
Everyone a CVS and the bank knew me because I was "the girl who passes out". Lol... I'd always be placed at the front of the line . I never went anywhere without knowing where the nearest chair was located.
Does this sound familiar?
I'm willing to bet it's from the Lyme disease which I also have. Look up Neurogenic orthostatic hypotension. Try Mayo Clinic and if you can relate to what they are describing then dig deeper into sites dedicated solely to those with the disorder.
There are clinical trials being done because more and more people are suffering from this syndrome. It involves the autonomic nervous system being affected in some way that causes the symptoms.
There are tests that can be done to help pinpoint the origin of your symptoms. One of the commonly used one is a Tilt Table test. The problem is that many doctors, like me, would find it easier to use anxiety because they have lost their passion to be diagnosticians. She looked at me when I requested a Tilt table test!
You probably need to go to a University hospital to have it done. I'd recommend you go to Mayo , Cleveland clinic. Etc to avoid going crazy in getting your needs met.
Autonomic dystopia is like the umbrella over several different types of these syndromes.
Safety is the biggest issue. I don't know how bad yours is but I broke down and did something I never thought I would do. I bought a walker with a seat attached. It provided me the ability to be more independent because I'd have my chair right there so I got out and did shopping again. I got part of my life back!
The other point I need to make is that having continuous tachycardia can take its toll on your heart. You should start seeing a cardiologist who,hopefully, will be aware and also listens to you. Whatever the cause, the heart rate needs to be treated.
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