I have had HS for many years and only recently been diagnosed
I'm sorry you have suffered for so long and only recently been diagnosed with this horrible disease. It seems that the average years until diagnosis is about 10 years, but it's starting to get better with awareness initiatives. We used to think of this as an orphan (rare) disease, but we're now realizing that it's actually quite common, simply undiagnosed or misdiagnosed. If there anything you would like help with, specifically? Or are you looking for good resource material, support, etc.? Let me know what you need help with, and I'll try to point you in the right direction.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 27 Dec 2010 • 4 answers
Posted 6 Jun 2012 • 3 answers
Posted 9 Nov 2012 • 3 answers
Posted 22 Aug 2013 • 4 answers
Posted 2 May 2015 • 2 answers