... its getting worse and i cant afford treatment on my own, is there any programs or any sort that could help me, and what can i do at home to help i get them almost every where, under my arms, on my stomic, under my breast, on my neck/spine. and lately on my legs... im mostly worried about the ones i get on my spine it causes problems seeing and lots of headachs
Hidradenitis Suppurativa - Ok I have had this for 12 years, and now just finding out what this is.?
- 6 Jun 2012 by Angelao0o0
- 10 September 2015
- hidradenitis suppurativa
I went searching online because usually any disease has an organization. I could find none for this. It appears to be an "orphan" illness, one in which nothing is really researched and there is no cure. I did find that taking zinc sometimes helps, along with wearing loose clothing, but not much else other then treatment by dermatologists. Check at your local hospital see if they have a free clinic. Sometimes teaching hospitals have well established clinics going. We have a religious group in town that operates a clinic also, so maybe you have something like that. Possibly you could get medical assistance for treatment. Once you see a dr and get prescriptions there is usually help paying for the prescriptions.
Hi Angelao0o0.. Hidradenitis Suppurativa is thought to be an auto-immune disorder with almost 1 million sufferers, mostly in silence .. it is a very mis-understood and painful disease. There are a few herbs I would personally try to boost my immune system, and cleanse the blood to start. Immune : 1. Echinacea angustifolia, 2. Osha 3. Goldenseal (hydrastis) For blood purification : 4. Yellow dock 5. Burdock. 6. Dandelion 7. Oregon grape root. As a Nervine, skullcap and valerian. Also a change in ones diet seems benificial. Usually there are specific trigger foods. These foods such as tomatoes, preppers, and potatoes belong to specific groups. Tomatoes and such are nightshades, cabbages and broccoli are brassica's. Certain food groups may be a trigger for flair ups. To check yourself for triggers just stay away from a certain group of foods for a week and monitor your bodies reaction. Keeping a food journal can help.
Also refined foods, white flour, coffee, and white sugar should be used extremely spairingly especially during this process. I hope you find something that can help with the HS. If you have questions about the herbs or anything you can message me further,I'm happy to help. Best wishes
I have myself signed up for alerts whenever the keywords "hidradenitis suppurativa" come up in a news article anywhere in the world, and something came up today that grabbed my attention. It wasn't necessarily the article itself (or the image that came with it, showing how normal follicles have almost like a fiber connection that keeps it hooked under the skin; then with HS that connection 'ruptures'), but the website that was linked in the article. irishskinfoundation dot ie slash HS
One of the things I think we ALL struggle with is how do I tell people what I'm dealing with because the internet is full of only the very worst and most heart-wrenching and scary pictures, we don't want to give them the name of our condition out of fear that they look it up. Well, this website had .PDFs titled "Children's Guide to Understanding HS and its' Impact", "Is Your Partner Living With HS?", "Is Your Friend Living With HS?", and "Employers Guide to Understanding HS and Its' Impact".
These may be resources that we have never before been able to share or provide to others to help them understand. I don't know if they will help anyone, but if they do, I am so glad. :)
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