... and 30 years old now. on top of that i have eldhers danlos syndrom (know as marfans aswell) i also have bi-polor,schzo effetive disorder,and major migrains sence i was 10 years old. my mother, two brother and younger sister all struggle with the fibromyalgia and marfans. weird we all have the same things but all variy in symptoms. and have other heath problems we all share. i have a four year old daughter. and it has been horriable not beable to enjoy the littlest things with her and her thinking or wanting to take care of her mommy. very sad i hate my self because of that in its own. my question is iv tryed all and many medications. and have been treated like S*** from tons of doctors unbeliveable thing told to me. but iv gone on trying and hopeing for someone to understand and help. i just want to know if there is anyone else out there thats having the same bad luck with doctors or as many problems as or the same combination as mine. who has any advice on anything how to deal with it. im soooo lost confused overwelmed , and need some kinda help or helpful advice?
I've come to realize that this is one of the most frustrating illness that one can have. I've been struggling with this for over a year now trying to find the right combonation of medications as I also have Lupus and rhuemtaoid arthritis and migraines. I have two boys and a husband who don't quite understand why mom can't do the things that mom's should do. it seems like the meds either make you want to sleep all the time or make you stay awake there is no happy medium. I have no moved on to Cymbalta 60 mg a day I've only been on it a few days but I can sort of tell a differnce, so I'm keeping my fingers crossed. I also take 100 mg of topamax a day for migraines, it's a trial and error disease until you find the right meds and the right doctor who will help you. I think we have to be our own advocate. Good luck and I hope you find the right answers
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