... finally did see the doctor and he refered me to the Rhemotolgist(dont know if i spelled it right) after many many years of pain and suffering and many neg blood test my blood test came back postive for Rhemotoid arthrtis.Now i have to take a ton of blood tests and they are going to setup some kind of plan to try and boost my immune system up.Been taking morphine and perocet for breakthrough lately and it doesnt even feel like i have taken anything.I have been in so much pain i cant even sleep much.Hopefully now they can get me on a pain reduction plan now that they know whats wrong.Hope everyone is doing ok sorry its been so long i just wanted to let you all know what was happening because you were so kind to help me out when i needed it.God Bless Sharon
I hadn't been seeing you post much and that is not a good reason to just let time pass I am glad to know that you are seeing someone that may be able to give you some answers and maybe set up a plan that will help you start to improve. You take care and I will check back and keep us informed. Caringsonbj (Billy)
Glad to hear you finally found the answer to your pain and that you are getting relief!!
There's nothing as bad as being in pain and not knowing whats the cause!!
At least you know now and the only way is up from you getting better!!
Happy to hear your good news!!
Best of luck,enjoy catching up on that much needed sleep!!
Hi IndyLady. Was wondering why we hadn't heard much from you lately. I am so sorry about your diagnosis, but there are a lot of new drugs out on the market for RA. I subscribe to Arthristis Today magazine, & it is a wealth of info for RA patients. They do have a web site also. Last time I gave out this info DC decided not to print it (competition?) But do give it a try. Lots of support...
I too have been wondering where ye went! Happy to see you back, yet I am not happy about your diagnoses.
RA can be so painful, no matter the age of the patient. Mary provided a great idea (no surprise there, for she is a resourceful Lady!!) check out those sites.
RA can be managed and I do pray you find a good Rheumatologist (sp) to help you!!!
Welcome back and stay with us gurl !!
Hi, I'm new here, but not new to chronic pain (back/hip problems). It can be extremely frustrating when you're not getting answers, it took ages for doctors to take me seriously, even give me an MRI, because I was relatively young to be having such problems.
But, now the healing begins. Now that you know WHAT is causing the pain, you can begin trying various treatments to see what works best for you. Just don't try to 'appease' the docs, if something isn't working for you. If that's the case, let them know why you feel it's not for you, and move on. Don't let anyone guilt you into just going with 'meh' treatment, b/c they *think* it's the best.
Also, my pain management doc, who is fabulous, told me our first appointment that chronic pain oftentimes goes hand-in-hand with mild to moderate depression (which, In turn, will make pain worse, and cause sleep disturbances). I would sit down with your doc, say you just aren't feeling 'yourself', not sleeping, ect. Then say it. Tell them you think you may be depressed. (I KNOW it's hard, and almost shameful to say... but when I said this to my primary doc, he said that mood disturbances/depression are one of the biggest reasons why ppl come to see him, he see's multiple ppl for it, daily, and I live in a small town! You aren't alone, I promise.) Just tell the truth, they can then work with you to find an anti-depressant, or whatever you need to balance you, so you can FIGHT!
As for the pain meds... have you been on them long? You may need to start taking them, on a rigid schedule (and this may even mean taking them when you don't feel you need to, for a bit) as prescribed. Eventually, you will cycle through the pain, and get a better understanding of what 'flares' you, and when/time of day, the pain is worst. Keep a little notebook, and every hour, or every time you take your meds, rate your pain level, note the time, even the weather conditions, plus what your activity level/what you've been doing. Try some safe things that may cause relief... like, a little light yoga/stretching helps me, going to the chiro when I'm really bad helps, massage feels bad at first, but eventually helps, using Ben-Gay type patches in addition to the meds, when I know I'll be walking around alot helps, heat... ask your dr's for some recommendations of what may help, try them, wait a bit, and notate if it helped, or not. Do each a few times though, to make sure.
It's a long, hard road, and I'm not even sure what all is involved with RA... but eventually, if you take the above steps, you'll find a plan that allows you to live the best life you can. Most importantly, find an RA doc that you really like, and feel comfortable with, who doesn't downplay your feelings or intimidate you, who LISTENS and is willing to work with you, as long as it takes. Make sure your primary understands your condition, and is willing to work with your RA Specialist, as needed.
Another important thing that I've found, is to find a pharmacy that you like, that has pharmacists and help who are kind, and who understand why you take what you take, especially if you end up on multiple meeds: RA, plus pain, plus mood. My 1st pharmacist made me feel uncomfortable at times, not overtly, but I felt he questioned my need for any meds (b/c I look, outwardly, young and healthy) and made me feel MORE shameful than I already felt, for needing meds. But, then I found a great, SMALL pharmacy (forget the Walgreen's and 'big' guys... they're fine for the occasional antibiotic, but otherwise, you're just a # to them, sadly), introduce yourself, kind of give a short overview of your health issues (if you feel comfortable), and 'make friends'. Believe me, my relationships with my pharmacist and staff have really come in handy. They'll work with you, if you're honest, kind, and work with them. Try to do the same with a nurse or aide in your doc's office, too. It helps to have a friend on the 'inside', who can cut through the crap and help, if you need. Just don't take advantage of them.
Sorry for length, but these are things that took me years to learn, but I wish I had know at the start. Best of luck! Ana
I don't have RA but have been to many, many pain management
doctors. And everytime we move (my husband is in the Military), I have to start all over. I've sworn to never give up, but sometimes I get so frustrated I wish I could dig a hole and pull the dirt in behind me.
How long is your wait to get in to see the Doc? Soon I hope!
I hope that you are continuing to improve, we have 3 maybe 4 rheumatologists I had had neuromuscular problems associated with polio and that is the reason that I have pain I also fell this past winter when we had the ice and of course I got hurt the pain management doctor I have I am very fortunate she has really helped me to achieve the best level of care I think anyone could give, the neurologist that I have been involved with he is very busy but both of them spend a lot of time and put forth a lot of effort, I have had infection because of an immune defect but I am very blessed.
keep on improving take care
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