I have Fibro, Chronic pain back pain such as bulged and herniated disks. I have been taking Effexor, Lyrica and Tramadol (which I quit taking recently cause it did not seam to help) and of course Tylenol (every 4 hours) and Ibuprofen. But I am still in constant pain. The Doc's do not seam to understand that the Meds I am prescribed are not proving proper pain control. I still struggle daily to get through the day (work & home life). Does anybody have any suggestions for me?
How have you been taking the tramadol. I've found that you have to take it on a regular basis, not as needed. Once the pain gets started tramadol isn't going to help. I take 100 mg every 6 hrs, it takes the edge off, but that's about it. One thing is that its impossible to get rid of all fibro pain. Its very hard to deal with. The docs tend to not want to prescribe anything else because everything else is a controlled dr. Have you seen a pain management dr. I worked with fibro for 45 yrs, full time and more. You have to push thru the pain. No one will understand how much you hurt, or if you're grouchy why you are. You look like nothing is wrong. It gets demoralizing I know. You have to have mild exercise every day, even a short walk. I have mornings I can hardly get out of bed, but I know if I stay there I'll just hurt worse when I try later. I pace myself.
When I do things around the house, I work for a while, then sit for a bit, then back to work.
It takes longer to get things done that way, but at least it gets done.
I just packed up everything then drove 7 hrs in a truck, all by myself. The only help I had was loading and unloading the truck. I could hardly walk for the next week, but I still got my kitchen unpacked and clothing out that I needed. Now I'm working a bit slower. My furry little boys felt they didn't have to help with their toys, lolol.
Opioids are not recommended in the guidelines for fibro pain. That is why most docs wont prescribe them for fibro. The guidelines warn doctors that opioids can make fibro pain worse due to rebound pain. Tramadol is the only opioid allowed in the guidelines. You also have back pain though, which they will sometimes prescribe opioids for. Is your pain primarily fibro pain or is it back pain? If it is primarily fibro pain, regular daily exercise is your best treatment and this one is hard because the last thing you feel like doing is exercise but like Km says, you have to push through it.
If your pain is primarily back pain, seek pain relief for your back and not fibro (dont really mention the fibro-let them know the back pain is the generator) I mean I'm not telling you to lie but just be sure to communicate that the pain is from your back and play down the fibro portion that way they follow back pain guidelines which do allow opioids at some point (usually after conservative treatment fails). This is only if the back pain is the primary source of your pain. If your primary source is fibro, taking opioids will start you in a vicious cycle because in taking the opioids, you will cause yourself more pain. It will be okay until the pills wear off then you will reach for more pills because the rebound pain is worse than before so it gets to be a very vicious cycle and you dont want to go down that road.
I agree with dzoobaby. She is one smart lady. I dont know much about fibro but I have bulging discs too and am in constant pain. Fortunately I have a good doctor who is willing to help me. I I have not found the cure I was looking for but am getting some relief with physical therapy and medication. If your epidural does not help or your doctor can't or won't do anything to help you maybe you could get another opinion. A back specialist or neurologist,new MRI, a referral to a pain management doctor. I just started a new round of physical therapy and I think it is going to help. There are many options available and you deserve some pain relief.
Sorry to hear that you are in so much pain. Things seemed to be on the up and up when we last communicated. You are still waiting for your epidural and a pain clinic appointment, so it is a case of what can you do in the meantime. I am assuming that you FP will continue to prescribe oxycodone until you have your epidural. If you take your Tylenol with the oxycodone it will enhance the effect of the oxycodone. As you are unsure of the of the cause of your pain (is it the discs or FM) I think it is going to be a case of back to basics with regards to the FM as you state that you have wide spread pain. Hot bath/ shower, take rest periods throughout the day, heat pads and massage. A reduction in your working day hours may help.
Take care EG
I went thru all that stuff you all are talking about and what helps me the best (and I understand you don't want to take narcs.) but sometimes that's all that works! I make up a cocktail of several meds in the am and that gets me thru most of the day and then if I hurt at night then I just take my break thru meds. My cocktail is; OXYCONTIN 80 MG, DILAUDID 4MG (break thru), MOTRIN 800 MG and VALIUM 5MG. That's my am cocktail alot of ice packs! It works most of the day then if I start feeling more bad pain or a flair up I take the 800 Motrin and if needed some Dilaudid. Motrin helps me the best when I get flair ups! This system took about 10 years to figure out what was best for me. I have taken all those meds the others talked about and I wasted my time. I also believe in sometimes LESS IS BETTER!! You don't need to take more and more to try to feel better. Try less, its better for you too!
Hello, I also find that tramadol helps my fibro. I have been diagnosed with FMS for 25+ years. However, when it's really bad I have found that I have to "blast" it with meds. I take 2 flexeril and oxycondon, hydrocodon or Tylenol 3 (Tylenol with codeine) along with .5 mg of ambien at night. If I do this I find that I can break the pain cycle. Don't know if others do this, but as others have said, it takes a long time to figure out how to deal with the pain. "Breaking" the pain works for me in addition to taking at least one day of rest. I call them the "lost days" when I have to just rest, watch tv and veg out. I know that when I have commitments for a number of days I will likely end up in significant pain because I have had to push myself.
Then I have a "lost day" On those days I have learned to not self criticize, that I have to do nothing, but allow myself to listen to my body and know that I will be able to be up and about in another day or 2. Because most MDs don't understand FMS or CFS, those of us who have these conditions have had to learn to "self medicate" in learning what works for us. I must admit that I have a renewed understanding of people with emotional issues who have self medicated with alcohol or other "illegal"drugs. It is a daily struggle to only take the medications I absolutely need and to learn to deal with a certain level of pain for which I take nothing. That's what makes this site so good. Others really do understand what you're going through. The "silver lining" is that you become more understanding of others and the chronic pain they deal with, be it physical or emotional. Be well. BRuthD
You've already gotten a lot of good information here. One of the main things you need to remember is that we are all different and that different regimens work for different people.
I've been suffering from back pain due to degenerative disc disease, osteoarthritis, bulging discs, etc., and I've tried just about every treatment there is. This includes steroid shots of epidural's.
For me, opiates do work and make my life livable! Without them, I am pretty much a vegetable -- lying in bed watching TV, then moving to a chair because I need to be in different positions. I cannot remain in the same position for any length of time without my Oxycodone. I can't even take a short walk around the block with my dog if I don't take my pain meds.
I have depended a lot on my husband for help for many years now. I'm very thankful to have him! I have instructed him to let me know if he ever sees me "nodding out" while on my pain medications or if I appear to be "loaded" in any way. I witnessed this happen with my mother-in-law while she was on pain medication, and it's the last thing that I am aiming for. I realize that I will never be completely pain-free, only able to function better in everyday life.
One more thing I want to add is that I cannot take the large amounts of aspirin, ibuprofen or acetaminophen that are contained in Vicodin, Norco, Percocet and the combination drugs because I have Hep C. For this reason, I take oxycodone and only take ibuprofen as needed for breakthrough pain. I would be on an extended release opiate except for the fact that I cannot afford it. I save hundreds of dollars by taking oxycodone rather than OxyContin!
Everyone responds differently to meds, but I must tell you that Trazodone has greatly helped me from being very disabled and in pain, to very few symptoms of fibromyalgia. I have been able to keep increasing the dose through the years which has also helped. And Trazodone is not a pain killer. It is a very old anti-depressant which I still need another anti-depressant to treat my depression.
bll86, I suffer from some pretty severe fibro, CFS and also lupus. I have been on a dozen different pain meds since I was diagnosed 28 years ago. Seven years ago I had a car accident that I shouldn't have walked away from, but I did. It caused some serious back problems and a concussion. I find that I need the opiates. I take Percocet at the moment but it's not doing much.
Doctors are afraid to prescribe ANY opiate or controlled substance. The FDA has tightened the regulation of these drugs so much that some doctors will not prescribe them. My doctor is on the verge of opting out of issuing controlled narcotics because of the reporting mess they have to go through to do it. She demands a drug urine test every time for every patient every month - even the 92 year old woman I know that has been going to her for 20 years.
The doc put me on Cymbalta twice a day a couple years ago but I have never felt any change in the pain. I can only take one Percocet every 8 hours... I combine that with Tylenol, Aleve and pray for the best. Feel lucky if you can get any medication for the pain.
If it is just your back, rest a lot and seen a good doctor that knows both the fibro and the spine. There aren't many, but you can find one if you search around. Good luck and if you find that doctor let me know. I will travel if I have to to be able to get rid of my back pain.
I have FM and severe back pain myself and have been put on a whole host of medications. Let me acknowledge your feelings that it is very hard to get doctors to understand your pain and what does and does not help. I have found that the older medicines i.e. gabapentin (for neuropathy) non-opiate muscle relaxers: Skelaxin, Parafon Forte for muscular contracture, and ibuprofen 800mg have helped. I have just been put on tramadol ER 200mgs a day and it is working. My breakthrough pain med is Norco 5mg. This combination has kept me mobile for they last 7 years, with the exception of my new extended release tramadol. Regular tramadol is short acting and 50mgs was never strong enough for me and I’m 5’ 120lbs. Also and I know this is scary I am going through it right now. Search for a doctor that understands FM and chronic pain syndrome. They are out there.
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