... I have a million questions. My first will be, after being diagnosed, have many of you had to give up your career? I have recently had to cutback to part time but am so defined by my pain, that I don;t know how long I can keep it up.
Hi Frankie B,
I had to close my own business due to fibro pain. I know that's not what you wanted to hear, but tis the truth.
The constant pain is indeed a horror, I feel for you. Are you on any meds that help with your pain (only answer that if you feel comfortable), or are you going commando, and I don't mean no undies under your kilt when I use the word "commando"! Do you have a rheumatologist?
Could you add more info, Frankie? You'll have loads of answers by days end, but we do need a bit more info, if you please.
I've had fibro for several years, only diagnosed about 3 years ago. I'm a single mom & have very recently had to go back to work full time, after being off for 10 years! I also have 2 herinated discs, insomnia, rls... etc. I take 150mg of Effexor for the fibro and this helps a lot, from barely being able to stand & brush my hair to being pretty functional during the day. I've applied for disability a couple weeks ago & will see if this will help me so I can work part time. Have you tried any meds for your fibro?
I've had to alter the type of nursing I do as well. I cannot work the floor anymore so I work for an insurance company doing deskwork on the computer. Some days it is not so great to be sitting all day either but at least I'm still able to work as the breadwinner in the family.
Welcome to the site! I remember answering the longer version of the census questionnaire with answers as though I was disabled, e.g. do you have difficulty getting dressed. It hurt me to do EVERYTHING. I was fortunate that medication did really help me, but not everyone is. I started taking Trazodone which I kept increasing so that I was still able to conduct training full time, including loading all the boxes of supplies in and out of the car. Then a few years later, I also got more relief from Effexor (just like the other person who answered above). Also top experts say to exercise as much as possible, without overdoing it, which does help with the pain. I regularly took walks. But there are people who are not able to work with fibromyalgia. BTW, you only take Trazodone at night because it is a great sleeping pill, but is non-addictive.
Now, I really am DISABLED and in pain from other things. Can barely do much of anything--not just work.
My first question to you is:
- do you currently take any type of daily pain medication?
-What other drugs are you or have you tried to help manage the Fibromyalgia?
- What type of Dr. is managing your Fibromyalgia?
I went un-diagnosed for about 15yrs & worked full time & sometimes worked two jobs plus raised two small children.
When I finally realized something was actually wrong with me & I had to find out what.
I have had Fibromyalgia for 35 yrs & continued to struggle to work up until October 2011. After my drs. constantly telling me for 3yrs that I needed to quit working & to go on disibility also I have ALOT of other Chronic conditions. So I finally decided to quit working & filed disability.. And yes, SS disability does acknowledge Fibro as a disability the fact I 3yis unless you have more health problems it is a long process to be approved.
I filed for SS disability & my lawyer told me that usually without underlying disease it is hard to be approved.
I have Alot of other medical problems & one being one that is a chronic illness that will result in death. So I just went to talk to the hearing in front of the judge a couple of weeks ago & I should be approved soon to start receiving payments. But it cost take
15 Months to be approved !!
So before you decide you cannot work make sure you know that you will have a long waiting period.
Best of luck, kathy
I am so sorry that you've also been through the trials of having Fibromyalgia. When I was in a car accident in 2008, the whip-lashing of my body brought on Fibro. At least I am glad that it moves around my body, not staying in one place very long. Doctors have tried all the Fibro medications (even Litacaine), but without success. It seems as if you probably have done this as well.
I began taking Glucosamine and Chondroiton (500mg/250mg) 4-to-6 divided over the day (taking 6 is the most my doctor approved). I find that it keeps the noticeable pain down as it helps with inflammation. I can still press "around" and find the painful areas, but I'm better because of the supplement.
If it works for you, Swanson's supplements (online) have great prices. They can also send you a catalog.
Along this same line, I have heard about Instaflex where only a few pills are needed, but I have not tried this. Maybe you have seen the free offer for a sample bottle on television.
Best of wishes, C.E.
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