I have been told I have TN by 2 doctors and 2 say probably not, Was given neurotin by one doctor which I took for a week then stopped. Saw a neurologist and he said there is no real way to diagnose TN except with symptoms and he has prescribed tegretol 200 mg once a day, then 2x a day. My question is my pain is mainly my left, right in front of my ear and like a sqeezing headache and sometimes an ear ache as well. The nerve in front of my ear just below my temple is sore to the touch. I also sometimes have pain in my jaw and some slight currents up my cheek, but mostly is pressure and like a sqeezing headache which comes and goes sometimes a couple dozen times a day and getting worse. I did have extensive dental work done (a root canal 2x) and afterwards that's when I started noticing a stabbing pain in my jaw . I then was told to have the tooth extracted, which I did, then had a dry socket! I also had the bone scrapped and was restitched! Whatever this is I need a professional diagnosis before I just start taking this tegretol (which sounds like a bad drug with many side affects) and I am at a loss of where to turn next, any advise would be greatly appreciated!
Trigeminal Neuralgia is usually more of a shock like electrical pain. Yours sounds more like TMJ disorder to me. I'll bet your jaw is jacked from the dental work. Do you ever get clicking or popping when you eat or yawn? Since you had the teeth removed you jaw is uneven and causing the symptoms prior it was due to the dental work throwing off your bite. I have TMJ and a just horrible bite so every time I get a filling it takes multiple visits to get the filling filed just right so I dont get more pain the the TMJ. Go back to your dentist. there are several things they can do. They can file down teeth a bit to even up your bite or they may make you a device to wear at night to help the joint. With TMJ you can have pain in all the areas you describe and also sometimes stiffness in the neck and shoulder too on the affected side. I'd almost bet that it is TMJ! You have classic symptoms. What does your dentist say? I would work with him/her before resorting to the Tegretol.
To learn about trigeminal neuralgia (TN), its diagnosis and treatment, I recommend the following sites:
If you read through all the pages of the second site, you will discover that tegretol is the medication of choice for TN. I know that it has side effects, but you have to decide whether the benefits outweigh the possible (though not necessarily) risks.
Hey Streth, I have MANY of the symptoms that you are describing, and I guarantee that you have TMJ. What is causing you to have the pain is called bruxism and that means at night you grind your teeth. They have a special mouth guard, not uncomfortable at all, and no side effects either, that will help the pain get better. Some days the entire side of my face from my ear to my temple will be exquisitely painful. Even if you do have TN, your dentist will be able to diagnose, so either way, your getting a second opinion. I would go with the mouth guard. Good luck!!
You say you tried neurotin for a week & stopped. Why? It takes longer than a week , & an increasing dosage to get to a point it helps with nerve pain. A starting dose of 300mg won't take away the pain, but because of side effects (that you get used to) & increment it at about 300 mg a week until the pain levels drop. My husband takes 1800mg a day & it does help his neuropathy from diabetes. So maybe try it again. Just my thoughts...
I was diagnosed w tn in 1996. I had a very strong electrical pain on the left side of my face. After going to several dentists, I went to a neurologist who prescribed tegretol 200mg a day. I took it , and the pain was gone in a few days. I still take tegretol whenever tn shows its ugly head, roughly twice a year. Aside from it making me slightly sleepy, I never have had any other side effects.
- Neurontin Information for Consumers
- Neurontin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Neurontin (detailed)
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