CNS stimulants, Ritalin, Adderall, Provigil, dextroamphetamines, even mixes of them just dont work. I broke my leg, was prescribed hydrocodone 10- 325s. I had never felt so awake in my life since Narcolepsy! I am 47 and was diagnosed when I was 23. It was an amazing feeling! I could stay awake for a movie, or car ride! I could just " stay awake"! No fast heartbeat, or crashing! No anxious feelings. They were truly a blessing.
I have never heard of a doctor prescribing opiates for narcolepsy but I have heard of opiates affecting people the way they do you, keeping them awake rather than the more common making them drowsy. Only problem is going to be getting a doctor to prescribe an opiate longterm without an ongoing pain need. Have to discuss this one with your doc.
I have the exact same reaction you described when using hydro 10-325's. Several CNS stimulants put me in a narcolepsy state. If I don't fall asleep, I'm too exhausted to accomplish anything. This condition appears to be true for most of my family members also.
Having said this, I agree with the response previous to mine. It is a very bad idea to take any opiate-type drug daily and/or long term. Due to a spinal infection I have been in the position of using pain killers daily and the body does begin to react differently to the drugs. I'm not speaking merely of tolerance, which of course is a concern, but there are many other factors. How your body reacts to those wonderful little 10-325's will unfortunately change.
It really sucks, but it is what it is. I have never found a remedy other then vigilant self-care.
Sudaw - 58 y/o, female.
Hydrocodone is a more "speedy" form of opiate, like it's cousin Oxycodone. I wouldn't recommend taking opiates for ADHD, because of the addiction potential. I realize stimulants have the same addiction potential, but what you described "I had never felt so awake in my life " sounds like you were experiencing Euphoria, which doctors don't like.
It would be nigh on impossible to convince any doctor to treat a patient with an opiate for Narcolepsy, unless you found a very unique doctor.
Have you tried Desoxyn or Adderall? Desoxyn is pharmaceutical grade methamphetamine and many ADHD patients claim it is a god-send and helps them without the negative effects of other stimulants. I'd ask your doctor to try Desoxyn before asking for an opiate (you could get labeled an "opiate seeker" if you ask for an opiate for ADHD).
No studies have shown that opiates are effective for Narcolepsy, so doctors aren't going to chance to write an opiate script and get in trouble or hit with a malpractice suit because of it.
Have you tried supplementing stimulants with green tea extract or caffeine? Those seem like better alternatives.
It's also possible you're suffering from depression AND Narcolepsy. Perhaps seeing a psychiatrist or therapist for an evaluation would be helpful. There are many drugs that can help with depression.
If you do go ahead and ask for an opiate to treat Narcolepsy, I'd ask for Tramadol. It also has SSNRI properties (it's a serotonin enhancer and a norepinephrine reuptake inhibitor as well as a weak opiate).
i am on opana 40 mg.er. 4 times daily and oxycodone 30 mg. ir 8 times daily so i have been around the pain management community,i don't think you will get dr.to even think about that one.he will struggle at not laughing at you or becoming irrate at you.
you would have a better chance at scoring your vic's.at the liquor store down the street.
i got labeled numerous times because medications don't seem to work on me and the amount of opiates i am currently taking should have killed me because i am struggling to hit 140 lbs anymore and there is days i will take all 8 of the oxy's at one time when my spinal cord acts up...
i am trying to get my dr.to think about dexedrine and i think desoxyn is out of the question,the current 120 mg. of adderall extended release is junk for me also, i don't know how to get him the dr.to switch me up because i laughed at him when he said the potential for addiction after i put down all my medications on his sheet that i was taking for the past two years.
i will get him to get me on the desoxyn but it only comes in 5 mg. strenghts and i am not sure if my body will accept that medicine or the dexedrine for that fact, but right now i am in desperate need of some type of stimulant because of the opiates,even though the car accident didn't give me the adhd/narcolepsy . good luck
I am 29 and have been living with narcolepsy all of my adult life. I am currently prescribed 400mg of Provigil, 300mg of Welbutrin, and 10mg of Ambien. The Ambien is obviously to help me sleep through the night. Even with all of these meds, I get very little relief from EDS and cataplexy. A couple of years ago I began using hydrocodone to help stay awake. I only use it on days that are very important to stay awake for, like work meetings, family functions, or days that my usual sleep pattern just isn't an option. I usually take it once or twice a week. It is very effective for staying awake, and makes it much easier to sleep through the night. It doesn't seem to help the cataplexy. I am not prescribed hydrocodone. On the days I take it I use about 15-20mg to stay awake through the day. The wakefulness last long after any euphoria, or high would be causing.
I can take it in the morning and still be awake in the evening, so I doubt it's a "euphoria" that is causing the wakefulness. I doubt any doctor would prescribe hydrocodone for narcolepsy, which is very unfortunate seeing as how they feel drugs like xyrem(aka GHB/ the date rape drug) are a reasonable option. The drugs commonly prescribed for narcolepsy are less addictive than hydrocodone, but have just as damaging, if not worse side effects. The fear of addiction doesn't bother me since I have to accept the fact that I will always have narcolepsy and always be on multiple drugs for it. I hope someday doctors will take a serious look at how hydrocodone effects narcolepsy. Until then I will continue to struggle to stay awake through life, with the exception of the days I take hydrocodone.
"Back when was a kid" in the early 80's & first diagnosed with narcolepsy, my neurologist sent me to Univ. Pa. Medical Center where a neurologist was prescribing codeine for narcolepsy. Sleep medicine was very new back then. I tried it--it did keep me awake (with horrible constipation side-effect), although I felt like a zombie or a robot with the "on" button stuck on. Had to go on in my search for a better treatment.
For what it's worth, I've a similar experience (though not "never more awake in my life"- I just get to "functional"). I'm not diagnosed with Narcolepsy- Just chronic fatigue. I spent years yawning constantly, with extreme muscle fatigue, very easily out of breath, brain fog. I needed to nap all the time. I could not work full time because I could not stay awake for 8 hours straight. I have a bunch of auto immune issues, so I was eventually prescribed a low dose of Oxycodone (5 mg) for arthritis pain. It changed my life. I only took half a pill (2.5 mg), but with 2.5 mg every three hours, I can function, and think, and move my arms- And work full time and care for my child and my home and be a member of my family! I dont get out of breath, I don't yawn every 30 seconds.
I've been on this dose for 10 years without ever needing to increase my dose. Officially, i'm prescribed it for pain, for which I'm grateful as I do have a lot of pain that is fairly unmanaged because I'm unwilling to take more than this small dose, but the quality of life that tiny dose of oxycodone gives me is astounding. Even after 10 years of very low dose usage, I do not tolerate even 5 mg at a dose without getting itchy and feeling gross- but I've never "craved" or felt the need to change my dose, ether. I've talked to my doctor, and we can't figure out what in the world this is replacing (as it definitely seems like a deficiency of *something* that is being replaced). So obviously there is something that the medical world is missing- hard to say what! Good luck.
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