My Dr is about to place me on Cellcept for Auto Immune Hepatitis - I have been on Immuran 100mg and Prednisone 7.5mg but despite good blood results my liver has progressed from fibrosis to cirrhoses. I have extreme tiredness, nausea, hair loss and depression as a result of the prednisone. Would love to hear from others in similar position or any feedback about Cellcept. Thank you Susan Cordeiro, NSW, Australia.
Please see links below ... you may find it useful.
I just started CellCept for AIH. I am also on 35 mg of prednisone and have been on prednisone since June 2nd. I tried AZA and took 6mp for over 3 months, which did not work. My liver levels went up again. I too am suffering from the side effects of prednisone. The tiredness, a little hair loss, depression and terrible swelling, leg cramps, sweats and WEIGHT GAIN, which is so awful. I take a low dose of xanax twice a day to help with the side effects of prednisone, especially the shakes.
I also developed diabetes and ended up in the hospital because of the prednisone. Although it seems to be the only med that helps with the AIH right now. I will let you know how I do with Cellcept but so far the 6mp and prednisone side effects were worse.
Good luck and stay in touch! It definitely helps to talk to others with similar circumstances. I feel very alone sometimes.
My son has been On Cellcept for auto immune hep. since october of 2010. He has been responding to the medicine at high dosages.. He is on 750mg twice daily.(1500 mg daily) he is also on 3mg of entocort 3 times daily.(so 9 mg daily) My son becomes the devil on high dosages on prednisone. So Entocort has taken away a lot of those steroids side effects. This is the second time he has been on cellcept, the first time was for his kidneys.It has been a good drug up until now. I know this posting is from a while ago but if you have anything to suggest that would be wonderful too... On the bad note; my son has developed petite mall seizures.I would like to switch him to 6mp but do not know how that drug is. so I have been trying to find people who use 6mp...
My son was on Cellcept and a high dose of Prednisone for six months for pemphigous vulgaris (auto immune blistering disease). The Prednisone worked wonders, but he experienced horrible side effects. The Cellcept did not give my son any side effects. His blood results were good while he was on it as well. My understanding is that Prednisone and Cellcept work the same, except Prednisone is a fast acting and Cellcept is slow acting.
I hope this helped. Good luck!
I'm sorry to hear about your experience with AIH. Cellcept (which is Mycophenolate Mofetil) was very effective in treating my AIH but I couldn't tolerate it. But there's a happy ending to the story. I developed AIH in 2007 and was initially prescribed Azathioprine and prednisolone. Unfortunately I proved to be allergic to Azathioprine so took prednisolone until the side effects were outweighing the benefits (and the AIH was not controlled). I then took Cellcept (Mycophenolate Mofetil) but was unable to tolerate it (extreme nausea and heart arrhythmia). I moved on to Mycophenolate Myfortic which is the next generation of Mycophenolate and it works extremely well for me. My liver enzymes have returned to normal, with no side effects from Myfortic. Cellcept is a very effective treatment but if you find it hard to tolerate you might try Myfortic (which is a newer version of the same thing). Good Luck. Maria, Northern Rivers, NSW Australia.
- CellCept Information for Consumers
- CellCept Information for Healthcare Professionals (includes dosage details)
- Side Effects of CellCept (detailed)
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