... past and are still having problems and seem to be getting worse after years of stability. I had gbs in 2001 (then 48 now 61 years old) but continued to require narcotics and anti-spasmotic meds following "recovery". In the past two years the weakness and exhaustion increased to a point that I now spend very little time out of bed. Initially, (2001), over a period of three weeks, I became paralyzed from the waist down: no movement or sense of touch but excruciating pain. Upper extremity problems were weakness and loss of coordination. After 4 months I was admitted to rehab. When I went in, I could not even sit... After five weeks I went home using a walker and soon was walking unassisted but experienced intermittent falls. My medicines were reduced a lot but after several attempts to stop narcotics, my Md convinced me that after two years I had improved all that I was going to. After a year I returned to college and completed all but the final semester of a master's degree when the powers that be decided I was ruining my health and that even if I graduated, I would be unable to practice. I worked at two desk jobs but the combo of medicines and lack of stamina made concentration difficult so I was forced to reinstate my disability status. I was wondering if anyone out there had a similar health history following gbs and had any wisdom for me. Fifteen to thirty minutes of light activity forces me back to bed and I have given up socializing e.g. church etc. Other than a very loving but busy spouse my relationships subsist thru text, email and chat online. Does anyone else out there relate to what is happening to me?
I had Guillians Barre Syndrome in 2003. Both legs right arm and neck paralyzed. Was in hospital for 1 week then Nursing Home for 3 months. I am about 80% curred and am walking with a cane. Have trouble with stability in my legs and this seems to be getting worse. I am also interested in knowing if this syndrome can hit me again if I have the flu or other infectious condition. and how many others have or have had this syndrome
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 27 Sep 2009 • 1 answer
Posted 10 Oct 2009 • 1 answer
Posted 20 Apr 2010 • 1 answer
Posted 27 Apr 2010 • 8 answers
Posted 4 Sep 2010 • 1 answer