i cant run i have constant nerve pain and my legs are weak very frequently but also i had a severe case of gbs
My sister in law is still dealing with nerve pain she had gbs last year in september she is barely recovering. She is trying to work out but when she does her legs are very wobbly after and has difficuly standing. She almost didn't make it the gbs was starting from the feet up to her head it stopped about the head. I know a doc of my husband's said he had a patient that could only blink to say yes or no the rest of his body was dead. Gbs is a very serious disease and we were told it could effect her for a lifetime. Try before you go running taking one of your pain medication's that way the pain isn't as severe. Hope this helped you.
It is now 2017. Wondering how you are doing? I was hospitalized in Jan 2010. Spent 9 months on ICU on a respirator. I was totally paralyzed , could not even blink, upon admission. I experienced unbearable pain and although could not communicate, I was aware of all that was happening. It was hell! Today, I use a power chair, wear AFO's for foot drop, can step short distances with a walker and have claw hands. (fingers clenched). I have many residual effects, mostly in the former of flu like symptoms, and the worst being the overall burning nerve pain. I have been told GBS is very rare and EVERYONE has Complete recovery lol. Six people were in ICU with me with GBS. Mine is reported as a result from the flu shot. Regardless of what the source, I just hope there will be more research into this horrific life changing and life threatening disease and that more people become aware that it even exists!!! Caring thoughts to all GBS survivors. I really DO know how you feel!!
Two years ago I was watering my plants and was bitten several times on my stomach by a spider. By the next morning I knew it was not a mosquito bite, I believe the bites came from a spider. The area where i was bitten became severely red with hardness. The pain became unbearable in my stomach by day three it felt like someone was twisting muscles in my stomach. It is believed to have been a black widow spider. I was given antibiotics and continued to get worse. I screamed from the pain. Day four, I started having severe pain in my low back right around my kidneys. Soon I had to have help walking it was as if my legs would not hold me up. Next morning I got up tried to walk and my legs went out on me and I fell. Went to ER and DR seemed lost for what my problem was and I returned home. My legs became weaker and this time my daughter took me to family doctor. They knew something was wrong but just didn't know my diagnosis.
I was being sent over for testing at the hospital as I was leaving my legs gave away on me again. I was put in wheelchair and from ER admitted. I didn't become paralized but I couldn't walk my legs would not hold me up and by now I couldn't sit up without falling over. The neurologist said, the spider bite had attacked my nervous system outside the brain. I didn't know if I would ever walk again but after being in the hospital two weeks and rehab for three weeks I went home on a walker. GBS was my diagnosis. I have not done well physically since I was strickend with this horrible syndrome. My legs and arms feel tingling, weakness, trouble keeping my balance, pain in my legs, as well as the bottom of my feet. Extreme fatigue but my biggest problem is the pain in my back which radiates around my ribcage. I was diagnosed with fibromyalgia before GBS. I am discouraged.
I had GBS in 1985, started at feet, went fully to head, every muscle in my body atrophied and I ended up completely paralyzed. I was an athlete prior but this changed. Today, I have four issues I have faced continually. 1) Body Thermostat - I am almost always warm or hot and sweat a lot. 2) Foot pain and aches. 3) Loss of balance, not debilitating but no able to walk across planks or boards since. 4) I really struggle to lose weight, I can gain it fast but not lose it. Anyone else with any of these?
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