my brother gets these things called cluster headaches & for people who don't know what they're like migraines on steroids and they just totally put him out of commission. He takes Imitrex. Any other way people get rid of them(if there is a way) would help cuz Imatrex is extremely expensive. Any help would be appreciated. Thanks
Hi Buddy, a co-worker of mine gets them terribly. He also was on Imitrex. He also couldn't afford it, so he contacted the manufacturer and is now getting Imitrex for a very small fee.
I will see him in about a week or so, and ask him to get the phone number/website for you.
Hope your brother is feeling better,
I get cluster headaches and have for 9yrs now. It has only been the last couple of years they have finally gotten under control. I also have multiple sclerosis so mine come from heat interolerance and nueroligic problems. However, Imitrex won't do it! I take Topamax. My doctor started me on a low dose and we kept increasing until I got to a point where I am now. I am up to 150mg taken once at bedtime. So instead of 3-4 clusters a day I use to get when I started or waking at night with them I now get 1-3 A MONTH. I also try to keep my body temp cool and when I get a cluster use a cool rag or compress to aid in cooling down quickly. It helps! When I feel one comeing on I also take Fioricet... some will say that doesn't help others say it does. I say it does because you never know how long the headache will last and it can't hurt if it helps deaden the pain some or shorten the duration. Good luck!
Hey, I honestly don't know if what I get is cluster headaches or not. I have been told once that they were. All I know is I suffer from severe Migraines. My doctor has me on Topamax 100 mg three times a day. In my opinion, that's alot. I would take Fiorinal only when I got a huge one that wouldn't go away, period. Now they have come back full force, and I find myself taking alot of the Fiorinal, and I don't like that, and will not continue it. I have heard it can cause rebound headaches and such. I've also heard good and bad about Topamax. I've heard several people say it's a dirty drug and not to take it. But it's quit working for me, and I'm going to let my doctor know when I see him in just a few days. Does he have insurance? I do, and so far what I have taken is fairly inexpensive. I used a drug short term called Veraptamil. I was on it so little of time, I don't know if it worked or not. But you can go to the top of the page on Drugs.com and type in Drugs for cluster headaches and it will pull up a whole list of them, and you can find out the ratings on them, and if it comes in a generic. and someway find out how inexpesive it is. Good luck, and take care. Ruthie
My neuro calls my headaches cluster migraines ... basically they last too long and come on too slowly to be a cluster, but have eye and sinus symptoms one doesn't generally have with migraines. I've been desensitized to every migraine med there is; generally all I can do is lay in a dark room and take an Ambien in the hopes that I'll sleep through them.
Two nontraditional therapies that have helped though, are:
1. Inhaled oxygen. If your brother can get an Rx for oxygen therapy, that's the first thing I would recommend. It's the only tried-and-true thing for clusters. Breathing in 100% pure oxygen for 10 minutes as soon as it's coming on can stop a cluster in its tracks. It is also very inexpensive!
2. Taurine. I keep 2 24-oz cans of an energy drink handy at all times for this reason. I feel the headache come on, I drink one as fast as I can with 2 Aleve pills or 3 ibuprofen pills and sometimes it stops getting worse. Be sure to read the ingredients and pick one with taurine near the top of the ingredients list... it is not the caffeine that helps, but the taurine. Of course, don't overdo it or you'll start getting rebound headaches from the caffeine.
Hey Buddy, can ya stand one more response, haha. I had a client who had these, her neurologist told her they tend to strike people who smoke, if they stop smoking, the cluster headaches will go away. I smoke too, so that is not a judgement statement, and so did my client. She found taking a decongestant, in her case, Tavist D, which is hard to find, and a Fioricet, and going to sleep stopped them for that day. I was going to suggest amitriptyline nightly, to help with them, as it does help so many people, me included, who have headaches nearly all the time. Most of us eat plenty of fast food or restauarant food, and in my case, eating foods I fix at home, where I can control what seasoning goes in them, I have far fewer headaches or any type, be it migraine, tension or just plain headaches.
One theory is it is the sulfites in prepared foods, some sayit is the nitrites, some say it's the MSG, I have no idea what it is, but in my case, cutting back on those foods that are prepared outside the home, and the amitriptyline low dose, helped tremendously. It is said that cluster head aches strike quickly, are violently painful, and also quit suddenly, by the time a person took an rx pain med and it had time to work, the head ache would have stopped on its own. I certainly am no health nut, believe me, I am not, just thought he might could try the amitriptyline, maybe some eCigs if he smokes, and cut back on restaurant food, to see if it helped. I have heard these things are awful and hope they stop for your brother very soon. Patti
Im a RN who suffers from them.. Migraine medications fall into three categories -- preventive medications, abortive medications, and rescue medications.
i have found that Depakote is the best preventive medication, the ones that work best when i get them are actually STADOL nasal spray, and percocet.
And bultab / fioricet.
I have insurance so I dont know the costs without. I get 60 of the percocet at one time and it never hits my maximum copay of $15..
i would recommend getting put on a medication to try to prevent them, there are a ton out there. may have to try them all till one works well. some will work better than others. i tried about 15. and imitrex, didnt do crap! works best for mild migraines, not the clusters!!
I have really severe migraines & have since I was a teenager which was along time.
I take Doxepin for a maintenance medication & use Imitrex & Zomig nasal spray. I use the nasal spray if the headaches come on suddenly. And then I also take Tramadol for pain & Phenegran for the nausea. The combinations of all these drugs seemed to work well for my migraines.
But the last month I started getting these very sudden debilitating headaches that come on really fast. I had never had any kind of migraines like this before. I also was having them on the same side (Right) everytime which was unusual. Also my eye started having a twitching spasm feeling.
My nose would get congested & the most unusual thing was the pain was More a feeling that knives were being stabbing thru my eye socket into my brain. None of the normal medications were working. And these migraines would go on for days & sometimes weeks at a time.
So I went to my neurologist & she diagnosed that what I was having what they call Hemicranial Headaches which is a type of Cluster Headaches. She prescribed me Indomethacin that is a Generic drug that is only $ 10 a month. And after taking it for 3 days my headaches have gone away.
So if any of the symptoms I listed is what your brother is having you might want to check with your Neurologist & ask if these headaches might be the Hemicranial Headaches. I was amazed & SO relieved that these have cleared up.
I hope that this might help someone in this group. Take care, Kathy
my husband is currently in remission (thankfully!) He had the most success with pure high flow oxygen. After about 10 minutes on oxygen he was normal again. He was given many heavy drugs over the years that did not even touch his pain. He had such intense pain that he pounded his own head against walls - it was terrible. He had 10-15 attacks a day for months on end. Ergotomine was also perscribed and was good for him - only problem is over use has a nasty side effect (you loose limbs). Pretnizone was often effective to help break a cycle. His often came in 2-3 month cycles. Oxygen was key in surviving this horrific condition. He has been cluster free for 3 years now.
Cluster headaches are not migraine headaches.
He needs to see a neurologist I suffer from them myself I am currently in health care n in school to further my career but I had everything under the sun they have a migrane formula you can buy at any wellness center and it does help you need to give it time though also exercise whenever possible at least fifteen min of cardio a day can help there is no easy answer though I tried numerous things I was having infusions weekly because of the severity but I will soon b receiving injectionns ay the base of mybskull which are very helpful in severevcases good luck I know his pain and I'm sorry hope this helps
I've been getting Cluster headaches for 13 months, with only 5 to 8 days of remission now and then. I've had every test and taken many prescriptions.
What seems to work believe it or not is Benadryl. I get my headaches between 2am and 4am so I take 2 Benadryl before bed. Anything is worth a try. The pain is so intense.
I have experienced Cluster Headaches for many years and they come at almost exactly the same time every four years, last thirty minutes to an hour for thirty days. The only relief I have ever had is pure oxygen. If I catch the headache just as it begins I can quite often keep it from hitting full bore. No medication has ever helped and I have tried them all!
I have suffered from cluster headaches for years. I, too have tried every medication out there. I have finally found that verapamil and oxygen have helped me tremendously. People who have never experienced this kind of pain just don't understand how debilitating they are. I get so angry when I hear people refer to them as cluster migraines. They are 100 times worse than a migraine. Don't get me wrong, I feel for those who have migraines also. I said I get angry, when really meant to say I 'used' to get angry. Now I just tell people to google it. Most don't care enough to bother though. I used to read on the cluster buster community of people who have just reached the point to where they take their life. I had to stop reading these because it really upset me so.
Sorry, I tend to still get a little carried away. I still have them but with the oxygen and verapamil they are now manageable. Just try to hang in there and please don't ever give up. Keep trying and maybe you can find something out there that can't at least take the edge off. It took me years and went through pure hell trying to find something that would help. All I can say to people who suffer from these horrible things, you are not alone and please don't give up.
- Imitrex Information for Consumers
- Imitrex Information for Healthcare Professionals (includes dosage details)
- Side Effects of Imitrex (detailed)
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