I have taken Gabapentin, Requip, Flexiril,Lyrics,and Elivil. None of these meds work for me. I have a spinal cord injury,I was paralized(temporarily) due to the spinal cord injury. I can't sleep and when I do finally fall asleep after 3 hours of tossing and turning, I'm woke back up on bout 2 hours. I have twitches in my feet that make my leg do the same thing. I don't know what to ask my doc for since I have been on the other meds that didn't work. Can somebody tell me what I should ask the doc to try.
I have had restless leg syndrome for years and the one area that is not really mainstream at this time but has helped me tremendously is cleaning my diet and environment up. ONLY fresh organic, keep a diary of each thing you put in your mouth and watch for restless legs at night.
In fact even organic can trigger my restless legs. I had organic almonds no salt and my legs were off in space with in 30 minutes of consumption that night. I am so fine tuned in what I eat, type of water I drink, only the greenest of green cleaning products. What a difference my life is now as to years ago.
Even drugs can cause restless legs. I tried all the above drugs not helpful some made it worse.
Cold medications can trigger restless legs.
My best suggestion is keep a diary of each and everything you do until you have it under control rather than drugs. May sound oh so restricting but quality of life is so worth it. I look younger than my counter parts, weigh well with in perfect standards and can move fluidly all because of watching what I am exposed to and put in my body.
I spent over five years at the Environmental Health Center in Dallas Texas where service people exposed to agent orange and desert storm illness that lots of mainstream doctors indicated was all in their head. I got my life back after exposure to chemicals following the above recommendations. Trust me I have tried everything and the basics are the best.
Good Luck I would love to hear your thoughts and comments.
I'm so sorry you are having problems with RLS. RLS makes you feel so very uncomfortable, I would rather have pain. Have you tried Mirapex and MirapexER? They have both been used successfully by many. My sister takes Mirapex ER (extended release) and swears by it. It didn't work for me but it may give you some improvement. I hope you feel better soon.
I can sympathize with you. I have restlless legs now for over 5 years. Mine developed from a traumatic event. Mine is worse during the day while sitting at work. I keep heat on my legs as they are cold. It gets worse towards evening as it is also on my right side up to my shoulder. I can sleep as I am taking clonepin. I have tried Requip, Simiset, Neupro patch, gabapentin and Lyrica. Nothing helps. I call my neuorologist today and told him I want to go off Lyrica and gabapentin as it is not helping. I have been taking Lyrica for about a month now. So I am not sure what the step is. Waiting for him to review my record. I am starting to believe that nothing will help. When I first developed this I oould not deal so I started having panic attacks and developed depression. I lived in the tub. I was crying all the time.
I finally started seeing a psychiatrist and he got me on different mediicine for depression and anxiety. It helped so much. Everyone kept tellling it would go away so I believed them. Unfortunatley it has not but now I can at least deal with it. When I go to Florida I hardly have it. The warm weather helps so much. So eventually we will ive there during the winters in New York.
I hope they can find something to help us . Keep us posted. I will mention Mirapex to my neuorologist.
Per gabapentin, newer gabapentin enacarbil (horizant) is approved specifically for rls and studies show it is effective for rls. It it supposed to give twice the absorption of gabapentin and gives an extended release compared to regular gabapentin. I had bouts of rls while on regular gaba at high dose for a different condition, but don't think regular gabapentin helped with rls for me. If ever using gabapentin enacarbil, definitely read the side effects.
I think rls is different for each person, but noticed slight temperature changes coincided with more severe bouts. Like being warmer in one room then going to a cooler bedroom, so I would use a heating blanket. I found occasional relief by wearing knee high socks to bed, then as soon as it started bugging me in the night, I would take the socks off and seemed to help, then put them back on if it started getting worse again. Another thing that helped was buy two EasyComforts leg massagers that go on like a slide-on knee brace that are battery operated. Can be left lower or higher on leg. The vibration really helped. Usually only needed one on.
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