... have a medical diagnosis of GCA. Ideally, I would like to talk with 8 people per region in the northwest, northeast, south, midwest. This study pays $150.00 per patient interview. At-home family caregivers are welcome to participate in the interview per the GCA patient's request. The interview would consist of an in-person discussion w/ a team of two researchers for a period of about 1.5 to 2 hours. The only participation requirements are that patients have a medical diagnosis of GCA and that they are willing to talk about their experience from the time of pre-diagnosis, to their first seeking medical care for symptoms, to receiving their diagnosis, through to coping with GCA in the present time. The goal of this research is to gain insight and understanding from the patient perspective around the quality of care available for people who are living with GCA, and how the medical community might make steps toward any improvements necessary to close gaps in service and to help all people living with the disease at any stage. Participation in the study will be anonymous, but results will be published in medical journals for the medical community to learn from. Please contact me if you are interested in learning more about participation. Please feel free to share my contact information with anyone you know who may be interested in participating. Thank you. -Michelle Powers Phone: 612-767-4335
To All My Friends in Our GCA Support Group,
I've been on here for 4+ years and we all know the lack of medical knowledge and support concerning our GCA. I want all of you to know that I am personally already going to participate in the above study. I spoke to Michelle Powers (her number is above). I see movement, by virtue of this study, that SOMETHING is being done to maybe get better treatment and awareness in the medical field. Although we are told we can buy years with our disease, we all know that there is no known cause, nor cure. I urge all of you to at least call Michelle Powers and strongly consider participating. It is not an imposing study at all. Let's get some action going on GCA! You know, my friends, it was by participation in a cancer study 2 years ago, when i fought stage IV cancer in NYC, that help save my life and beat the cancer. This GCA study is a research study and they come to you! No getting stuck, prodded, or given pills etc. It's just information gathering.
Thanks for thinking about this. I believe its about time for movement and this can only help. Here's our chance to see something happen.
PS: Nitrobunny... what do you think?
Recent diagnosis of Giant Cell Arteritis and attempting to do all the research to identify the ups and downs of an unknown. Seems many questions with few answers..I am the personality type that searches for answers, possibly before I actually come up with the question. Thus, the wonder of the internet to read others past, current, responses to their real-life issues with our autoimmune disease diagnosis. I plan to make that telephone contact with Michelle Powers and if still wanting a GCA patient in the beautiful Sierra Foothills of California I will be more than anxious to volunteer what information/treatment/side effects etc. I have encountered to promote understanding and add knowledge to the research that my GCA has presented to date. -Sharon
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Updated 8 Sep 2018 • 3 answers
Updated 8 Apr 2015 • 4 answers
Updated 7 Dec 2017 • 7 answers
Updated 7 Dec 2017 • 3 answers
Giant Cell Arteritis - I was just diagnosed with GCA this week and currently in a horrible flare up?
Updated 8 Dec 2017 • 4 answers