... worse, and now are disabling. Mostly on left side, but also forehead and back of head. Jaw pain, fatigue, depression, and a little scalp tenderness (but that may be just because of headache.) My GP is looking into GCA. Question - I have bulging temporal arteries when I am in a bad headache, especially the left side. This goes away when head is not as bad. Is this a symptom? Also, VERY heavy painful back of head, and worsens much with physical activity. Does this sound like GCA? Only lying down helps, and it is helping less as time goes on... thanks for any feedback
Giant Cell Arteritis - 4 months ago out of nowhere I started having daily headaches. They got?
- 28 Jan 2017 by juliab13
- 28 January 2017
- depression, headache, giant cell arteritis, pain, fatigue, scalp
Added 29 Jan 2017:
Thanks so much for your responses. It made me call my brother across the country who is a physician (we don't have much contact anymore) and he said the exact same thing about going on the prednisone NOW and then getting the biopsy from a rheumatologist, and all I did was tell him my symptoms and that I was thinking possibly GCA. I am calling my GP tomorrow to advocate for this. Thanks again and will keep you posted!!
YES! All of those sound like GCA. The scalp tenderness can be PMR as well but the two are related. GCA is nothing to mess with and you really should seek medical attention as GCA can result in permanent blindness and worse. I'm surprised your GP did not refer you to a rheumatologist who would send you to a surgeon for a biopsy and possibly an ophthalmologist who would take a look at your optic nerve looking for damage.
juliab13; Sorry your having so many problems but glad you are seeing the doctor and the doctor is working on finding out what is going on. If you can't come up with an answer soon If it was me I would see a neurologist physician get a referral from your regular doctor if you need to. But all we can do here is help with medications and talk about how they affect us or others, We have no doctors or anyone that can diagnose anything by symptoms. Your just going to have to wait for your doctor to come back with an answer. I wish I could help sounds terrible. Wish you all the luck
Very sorry to hear your predicament. Listen to Nitrobunny. This sounds like GCA. I ran into the same thing with a GC dragging his feet even though we knew it was GCA. If you have it, understand that it is a medical emergency and starting you on Prednisone ASAP is so important. I ended up leaving my state of Florida because my GC, the Opthomologist, and a neurologist all failed to treat me even though they all mentioned GCA.
I went to NY and went immediately to a neurologist and he started me on Prednisone that day and within 6 hours the symptoms were better. I had lost my eyesight numerous, numerous times and I thank God that the Prednisone stopped that before it was permanent. I do have GCA and after 26 months of Prednisone I've made it 4 years with only a couple episodes. You need to get to a neurologist asap and get into a rhumitologist who will be your best doctor for your treatment. Don't wait! Stress that you believe you may have GCA.
IT IS A MEDICAL EMERGENCY, which means they must start you ASAP on meds. The biopsy can be scheduled too.
Good luck and keep us posted.
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